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← Return to Esophageal Lichen Planus
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Autoimmune Diseases | Last Active: Sep 1 4:02pm | Replies (129)
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I've had Esophageal Lichen Planus for 17 years. It is manageable if you can find a good gastroenterologist willing to do endoscopies with dilation when the swallowing becomes too difficult. For awhile, I was getting them every 4 months. I started receiving twice-yearly infusions of rituximab (a drug primarily for RA patients) last fall and I was able to delay the process to 7 months. Keep looking for those high-protein sources that can tide you over between endoscopies. I wish you great luck in finding the right medical support team!
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I really like my doctor at Duke and the team that works with him. I couldn't care less about eating because it's so uncomfortable on so many levels. The scleroderma is bad enough with all the GI problems it has cause and to add this ELP to it is just another slap in the face. I'm not going to give up or give in. I'm a fighter. And yes, my GI doctor has already talked about the esophagus stretching. So I wait for their plan once they put all the pieces together. Hoping to take my Humira Friday. It does make me feel better. Been of of it for 2 weeks because of being on the Fluconazol for the thrush esophagitis. Which is better. Not gone but better.
Thank you for answering me. I'm just a little overwhelmed with all of this.