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Has anyone been diagnosed with Sacral CHORDoma?
Sarcoma | Last Active: Mar 26 4:29am | Replies (16)Comment receiving replies
65 year old male, active, good health (other than SC), mentally sharp and happy, solid faith. I was just diagnosed last week with sacral chordoma. It was fortunately discovered through a pelvic MRI while checking on some residual nerve numbness from an icy slip/fall last Feb. Lesion is in my S2 and left ala. No pain or symptoms from the SC yet. Starting the process now of education and finding an experienced medical team to help with options. Thankful for this blog, and hoping to connect with others who may have this "unicorn" cancer.
Pax and best regards,
Jack
Replies to "65 year old male, active, good health (other than SC), mentally sharp and happy, solid faith...."
@jack78, just checking in. How are you doing? Have you completed treatment?
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Welcome @jack78, I'm tagging @nospilmusics and @bobisaacs to make sure they see your introductory post.
Who knew that an unfortunate fall on the ice could lead to your getting a diagnosis of sacral chordoma. Howfully this means it was caught early. You mentioned that you are looking for an experience medical team. If you'd like to seek a second opinion with Mayo Clinic experts, you can submit a request here: http://mayocl.in/1mtmR63
Has a treatment plan been suggested for you? What are your next steps?