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Use of vibration platform to loosen mucus

MAC & Bronchiectasis | Last Active: May 5 3:03pm | Replies (16)

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After not seeing my doctor for 18 months due to COVID, I returned for a CT scan that showed some progression in my bronchiectasis.

Based on the results, my doctor ordered me a vest. I used it consistently for six months, along with making other small but significant changes—and I was able to reduce the mucus impaction in my lungs and to clear my MAC infection.

When working with clients, I always emphasize the importance of managing expectations when starting vest therapy. It’s not like years of mucus suddenly start clearing out all at once. But over time, I do believe the vest can make a real difference—especially because it helps mobilize secretions from the lower lobes, which are often harder to reach.

I personally like my vest because it’s lightweight, has just one hose, and is easy to travel with. That said, I don’t recommend one brand over another. I know that at National Jewish Health, they prefer electric-powered vests over battery-operated models.

Speaking of travel—I’m heading to Berkeley, California in a week for the non-profit NTMir’s retreat for our 35 support group leaders. Even though I’m a volunteer patient advocate and not a group leader, they generously include me. Right after the retreat, I’ll be attending the two-day NTMir Patient Conference.

If you haven’t signed up yet for virtual attendance at the conference, I strongly encourage you to consider it. There’s a $75 registration fee, but it’s a small price for access to top experts flying in from across the country—including Dr. Joseph Falkinham, our go-to microbiologist from Virginia Tech.

And here’s a big perk: only registered attendees will have access to the session recordings for 90 days. The lineup is truly All-Star, and this is going to be an amazing conference.
https://na.eventscloud.com/website/82635/home/
Happy Sunday,
Linda Esposito

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Replies to "After not seeing my doctor for 18 months due to COVID, I returned for a CT..."

I'm thinking of registering. I recently watched the European NTM conference (ELF) which was 5 hours of excellent information, especially since I'm new to all of this with very little guidance from my 3 pulmonologists so far. I have also been wondering about vests/platforms/huff coughing/postural drainage/etc. It's all a bit overwhelming... everyone seems to do different things. I was put on IV Cefepime for 21 days for a pseudomonas "infection" which another pulmonologist said was probably just a colonization... and unnecessary and even detrimental long term. It's all confusing. I am on the Arobika and am supposed to be nebulizing 2-3 X day with 3% saline and Albuterol. I'm not sure if this is really working since I am also thinking allergies/pollen are complicating things. All I know is that I can't breathe well, I am super fatigued, coughing a lot, and nothing is helping. Yes... pity party all of a sudden. Sorry. You may all have been here at one point.