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Hi @rma83, You can have PMR with normal inflammatory markers. Here's more information:
-- Diagnostic difficulties in polymyalgia rheumatica cases with normal erythrocyte sedimentation rate and C-reactive protein values: https://journals.lww.com/md-journal/fulltext/2023/09290/diagnostic_difficulties_in_polymyalgia_rheumatica.48.aspx.
I'm not a doctor but I think just the fact that the prednisone gets rid of the pain is normally an indication of PMR. Have you been seen by a rheumatologist?
Replies to "Hi @rma83, You can have PMR with normal inflammatory markers. Here's more information: -- Diagnostic difficulties..."
yes.at the time it was a rheumatologist that diagnosis but changed her mind when a PA started there and convinced her (the Dr) that it couldn't be PMR. That's over 5-6 years ago and I've been through hell since. That's the only RHEU group around here so I will see my ortho surgeon tomorrow and there is another RHEU at U CONN in CT that he can refer me to, hopefully. Thank you for your help, I will look that info up.
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Agree with all your comments. For myself this applies. Also I’ve tapered off twice of prednisone only to get the temporal headaches and my hair hurts and scalp tender. So… I started actemra injections and I think I’m having some good results. My scalp has stopped being tender to touch no temporal pain yet less joint pain and will again begin taper of prednisone in about 2 weeks. 🤞🏻I am not yet at therapeutic level of dose so I’m hoping this new injection works to get me off prednisone and relief of PMRs multiple strange symptoms ( no more vaccines for me) and this site has helped me more than you all know. 🙏 Thanks