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Optic nerve sheath meningioma, worried about results 3 month checkup

Brain Tumor | Last Active: Aug 27 7:59am | Replies (15)
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Profile picture for santaflavia @santaflavia

Thank you Colleen. Yes, where to stay and who to stay with you as well....
I am quite "COVID" conscious, still, and so a congregate setting like the Hope Lodge with a shared kitchen is a bit scary for me as I also have Chronic Lymphocytic Leukemia and Small Cell Lymphoma which makes me more susceptible to infections.....I am taking two targeted therapies for CLL/SLL at this time and I have been told that I will have to quit those medications during the radiation treatment.....so, being immune compromised, I probably would be more comfortable someplace with an ability to cook in my room although I would miss out on the company and support of the Hope Lodge. Thank you for bringing this up.
My husband would be able to stay with me part of the time and I am trying to line up women friends who would be able to be with me the rest of the time. Thanks.

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santaflavia | @santaflavia | Aug 26 12:34pm

UPDATE:

I completed 28 sessions of radiation for Optic Nerve Sheath Meningioma in mid-July. I ended up not going to Mayo, with some regret.

I am wondering if anyone has an opinion/information about what type of imaging (and when)
is best for determining whether or not the meningioma stopped growing and the radiation was successful.

I still seem to be experiencing fatigue and a bit of, for lack of a better word, wobbliness at times.

Thank you .

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