← Return to Ultra-high-risk multiple myeloma: My post-transplant update

Discussion

Ultra-high-risk multiple myeloma: My post-transplant update

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 4 4:54pm | Replies (21)
Comment receiving replies
@ttjk531

Thanks Debbie, I really appreciate hearing your experience. It does help to know that some people had a relatively easier time than the stories I’ve read and heard. Hopefully since I’m otherwise healthy, I’ll get through it as well as you did!

Jump to this post

Replies to "Thanks Debbie, I really appreciate hearing your experience. It does help to know that some people..."
deb913 | @deb913 | May 4 8:09am

Hi - I’m glad it helped. And since you’ve said you’re relatively healthy, I want you to know that although I was healthy for me, I was 60 and had 25 years lupus SLE and a history of HLH (rare and serious immune blood disorder) both of which they were concerned might flare up during transplant. But that didn’t happen and all the doctors say I’ve been much better than average with my post transplant symptoms. And I’ve had no GVHD 6 months out (although if you’re using your own stem cells then GVHD is not a concern). I’m sharing this because if it could happen to me then it is even more likely to happen for you. All my best to you. 😀

VIEW AND REPLY
meg1685 | @meg1685 | May 4 12:10pm

The whole thing was much easier than I thought it was going to be. Your imagination is almost always worse than the reality!

VIEW AND REPLY