Hello, my husband (55 years old) was diagnosed with grade 1 stage 4 (primary in small bowel) neuroendocrine tumor last year. For at least 2 years before that he started having flushing of face and chest. Of all the hormones measured, testosterone levels were abnormal. Later after his diagnosis, we think this is related to the liver metastasis. As for imaging, ultrasound or initial CT scans were not helpful. What was needed was a MRI, followed by liver biopsy and then a PET dotatate scan confirmed the diagnosis. He is on monthly Lanreotide shots which controls his symptoms.
I would definitely advise you to consult with a NET specialist.