Nerve pain after discitis/osteomylitis of lumbar spine

momchesney, do you know if the original cause was viral or bacterial. Some develop chronic nerve pain, if there is nerve damage. You may have had subsequent or consequent damage to the disc or vertebra. And there may be remedy for the pain. You might ask for an MRI of the area to determine what can be done to resolve the pain. I hope it can be resolved. Three years of suffering is too long. I'd suggest that you don't wait for the MRI.

It was a bacterial infection and vertebrae biopsy said acute and chronic osteomyelitis. I was given 8 weeks of picc line antibiotics.
I am to have an MRI in 2 weeks.

I am also looking for information on discitis. I was just dx with it and most doctors have not dealt with it. I would appreciate talking to someone who has it and hear about their experience.

Welcome @laura2025 - @dreaminasecond has mentioned having discitis and may have some experience to share with you. If you haven't already seen it, here's an article on discitis that may be helpful.
-- Discitis: Causes, Symptoms, and Diagnosis: https://www.healthline.com/health/diskitis

Did your doctor start any treatments yet?

From what I understand I need to go get a procedure like a biopsy to see what is causing the infection so they can start the right antibiotic. My dr says Monday

Yes, I had to guide us with osteomyelitis and the L3 vertebrae. It took three weeks for them to diagnose it from the onset of pain that was so excruciating. I couldn’t stand or walk. Once they diagnosed it with an MRI and a CAT scan, confirming abnormalities in the end plates of the vertebrae they started vancomycin, Through pick line and eventually I had to go to a rehab rehabilitation hospital after three years I am still in pain.

So sorry you are going through this, hoping for the best possible outcome.

I had excruciating pain that started mild in the morning in my back and whole abdomen area but by midnight I was in the ER. They found nothing. I went to the ER 4 days in a row and all tests were negative for anything except CRP was high. No diagnosis. I gave up on the ER and tried to control the pain at home. They found nothing pain got better gradually in about 3 months but never went away. I went to a chiropractor and got 12 weeks of therapy and an orthopedic clinic and got a cortisone shot but nothing helped. So finally got 2 MRIs in the last week both confirming that it is discitis. So it took 8 months to diagnosis it. I hope we can fix it. Did you get antibiotics and did it help?

I am surprised you are not in the hospital ED already, it is quite an emergency. I pray the biopsy goes well! Maybe be went well and they kept me quite comfortable.
They did find both acute and chronic osteomyelitis. This only means the infection/inflammation has been there a little while and is still present.

I took 3 weeks for a diagnosis. First ER visit I was brought to the hospital by ambulance and couldn’t walk. Just a slight movement sent severe spasms through my whole body. But they still did not catch it. After 4 days in observation, an MRI, CAT scan and brutal PT I was sent home. But 3 weeks later a pain Mtg doctor said she was afraid to give me the scheduled steroid injection because of my symptoms. She sent me back to ER and they reran MRI and CAT then biopsy which confirmed discitis and osteomyelitis of L3.
I was given antibiotics (2types) via picc line.
Hope this helps you!