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Platelets Too Low for Chemo Infusion

Gynecologic Cancers | Last Active: May 14 3:28pm | Replies (34)

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sorry for the delay in answering but i just got home from the latest visit to my oncologist... NED means no evidence of disease and if you have specific things you'd like to know i'll be happy to try to answer them. Below is what i shared in another post

"My doc is very happy with how i'm doing local clinic will draw my blood and unless my CA 125 goes back up into the 30's (its 12) or i start having abdominal pain/losing weight/lose my appetite etc i don't have to go back!!! they'll monitor it through the blood work and any visits will be telehealth if warranted unless something happens....
his words were "whatever you're doing is obviously working, and we know the CA125 is a great indicator for you since it was 1600 when you first came in so that's how we'll monitor it. You look really good, your hair has come back beautifully which is a good sign, you've gained weight which i really like to see, and you look vibrant and healthy and full of energy so keep it up"
and for those who wanted to know what i'm currently doing, i take a combination of multi vitamin, 10,000 ieu's of D3, B17, tumeric/curcumin blend, and essiac... and i eat assorted mushrooms at LEAST once a day (usually sautéed in butter and added to my eggs, some times i fry some for lunch or dinner too) i'm just happy no more 4 hour drives for awhile 🙂

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Replies to "sorry for the delay in answering but i just got home from the latest visit to..."

Such wonderful news!!! I am so happy to hear this for you!

Thank you for the advice on mushrooms — I’ve heard that they can be helpful, especially lions mane (?) I will definitely start adding those to my diet and the supplements too.

Congratulations again on a wonderful outcome! So incredibly happy for you!!! < 3

@mommacandy This is such good news. Your oncologist is so very encouraging too.

My Integrative Medicine physician suggested mushrooms. She told me that the data is predominantly from breast cancer research but she recommends for gynecological cancers. She adds a mushroom extraction in powder form to her coffee in the morning. That's what I do too. She didn't have a recommendation for the kind or type of mushroom.

Like you, when I hear NED I think, whew. And no more 7 hour drives for another 6 months.

Hey, I was so worried about you when you were first diagnosed and described your journey which had so many bumps along the road. And now it's Spring! Time to dance and celebrate.🌹