I want to know more about TENS stimulation

Posted by cb3 @cb3, 4 days ago

TENS means transcutaneous electric nerve stimulation. "A transcutaneous electrical nerve stimulator (TENS) sends electrical pulses through the skin to start your body's own pain killers. The electrical pulses can release endorphins and other substances to stop pain signals in the brain. TENS can reduce pain."

This sounds good but I am still at the level of curiosity coupled with fear. Can TENS cause brain damage? And what's this about too much B6 causing more damage? I don't see how we can group everybody's metabolic systems into one clump. Can this stimulator cure PN? How long does the pain level stay at bay? How many treatments do you need and how often? I've seen the machines at Amazon. Would a neurologist have them in their office? Will this stimulator work on lumbar multilevel degenerative disc disease?

We do not have a neurologist in this whole county. And I'm not keen on traveling long distances to see one. And I just learned our Podiatrist is leaving so I need to find the new one who is replacing him. Your support is greatly accepted at all levels. Thanks. CB

Interested in more discussions like this? Go to the Neuropathy Support Group.

@jsiegel

Hi, happy to answer any questions you might have. I have a tens unit that accommodates four pads on two separate channels so yes, you can use them in multiple locations at the same time and when I apply them in the right positions and adjust the intensity levels to what’s tolerable, I find I get instant relief, particularly in my back. Yes, you can travel with it and conceal the wires and the controlling unit in your clothing. On occasion I’ve even slept with it on all night. Hope you find this information useful and are able to find the same level of relief that I did. You just have to experiment a bit. I do keep an extra supply of pads and batteries on hand because I use it a lot.
Good luck.

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Oh, thank you, thank you thank you thank you thank you for answering my questions. How did you test what you can tolerate? Did you try it on your hand or your leg ... I tried searching for "TENS intensity" on the net, but confusion popped up. I ask these questions because I don't want to hurt myself. And there is no neurologist practicing in my county.

It sounds like you have found the TENS-happy-medium. So now you can get out walk and socially engage like normal people. That's what I look forward to doing. Many hugs and blessings to you. And thank you for taking the time to answer my questions, as trivial as they may be.

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@cb3

Oh, thank you, thank you thank you thank you thank you for answering my questions. How did you test what you can tolerate? Did you try it on your hand or your leg ... I tried searching for "TENS intensity" on the net, but confusion popped up. I ask these questions because I don't want to hurt myself. And there is no neurologist practicing in my county.

It sounds like you have found the TENS-happy-medium. So now you can get out walk and socially engage like normal people. That's what I look forward to doing. Many hugs and blessings to you. And thank you for taking the time to answer my questions, as trivial as they may be.

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Trial and error, I started with the lowest setting and increased to what was tolerable assuming my body would let me know what was too much and that worked for me.

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Rather than TENS, I strongly suggest looking into SCENAR therapy, which the inventor of TENS himself said is far superior to his own invention. SCENAR improved my neuropathy symptoms by 70-80% I estimate. Unfortunately it’s not easy to find everywhere. It’s FDA approved, but not covered by insurance. I hope that changes soon. It’s commonly used in Europe and Asia for all kinds of pain relief. Google “SCENAR vs TENS” for more info.

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@cb3

I just ordered a TENS today. Hope it reliefs my neuropathy and back pain. I'm sorry you've experienced so much pain and suffering. And I pray you find something that offers some relief. At this group, we really do need each other, don't we? Hugs, CB

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I hope it works for you, My nerve damage started with the mrsa bacterial spinal meningitis. It caused my lifetime migraines and other complications. Just promise me if your nerves feel like they are on fire please stop.

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@cb3

Hey Gus,

Oh, wow! I'm so sorry for your suffering. I take a slew of vitamins and minerals. Why did your primary tell you to go off of them? I take things like Boswellia, Turmeric, Omega 3's for a few. I can't imagine going off of those. But I'm curious to know why with you. My PA is a Nurtitionist and she has never mentioned going off of the supplements. In fact she is the one that got me on Alpha Lipoic Acid. I hope your specialist gives you good news. You deserve it. Hugs, CB

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Hi CB,
I also was taking nerve vitamins along with many prescriptions for nerve conditions. I have tried them all. Since nothing worked with me and my PCP was concerned with all the possible side effects of all medications I've tried, she finally told me to stop everything and just stay on the blood pressure medication. The new neurologist put me on 600mg of Alpha Lipoic acid. I've been on it for 2-3 weeks now. I saw her today and there are more tests I need to do. However, she definitely confirmed the large fiber neuropathy and the cervicaland lumbar radiculopathy. She is starting me on corticosteroids for 10 days with tapering doses and then I will start a new medication used for nerves and epilepsy. She still does not have the full picture as it was only the second time I'm seeing her. She is also referring me to a spinal orthopedic specialist to check on the horrendous pain in my right shoulder which is almost rendering my whole right arm useless and I am right handed. This could be form the cervical nerve being pinched at C7-C8. Plus she also referred me to a neuromuscular specialist who may have more answers. I guess we shall see and I am living day by day with each new day holding something different as far as neuropathy is concerned.
But believe me, no physical pain compares to the emotional pain of having to deal with the condition all alone. That in itself can take a major toll on a person.
So, this is my story so far. I feel each person with neuropathy can write a book on what they go through.
Thanks for your message and take care

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@gus0557

Hi CB,
I also was taking nerve vitamins along with many prescriptions for nerve conditions. I have tried them all. Since nothing worked with me and my PCP was concerned with all the possible side effects of all medications I've tried, she finally told me to stop everything and just stay on the blood pressure medication. The new neurologist put me on 600mg of Alpha Lipoic acid. I've been on it for 2-3 weeks now. I saw her today and there are more tests I need to do. However, she definitely confirmed the large fiber neuropathy and the cervicaland lumbar radiculopathy. She is starting me on corticosteroids for 10 days with tapering doses and then I will start a new medication used for nerves and epilepsy. She still does not have the full picture as it was only the second time I'm seeing her. She is also referring me to a spinal orthopedic specialist to check on the horrendous pain in my right shoulder which is almost rendering my whole right arm useless and I am right handed. This could be form the cervical nerve being pinched at C7-C8. Plus she also referred me to a neuromuscular specialist who may have more answers. I guess we shall see and I am living day by day with each new day holding something different as far as neuropathy is concerned.
But believe me, no physical pain compares to the emotional pain of having to deal with the condition all alone. That in itself can take a major toll on a person.
So, this is my story so far. I feel each person with neuropathy can write a book on what they go through.
Thanks for your message and take care

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So true, we could all write a book about neuropathy and how it has turned our worlds upside down. I know your pain and I know your heartbeat. And I know how it feels to be alive but not living. And it's okay to be angry about it. Gus, we are positivists. We don't give up.

Lately I've been rattling on and on more than I should at this group. So I've decided to be more diplomatic. And I'll start here. Have you looked into TENS, the electrical nerve stimulator that helps relieve pain? My TENS unit should arrive today from Amazon. There is a lot of buzz about it at our Mayo Connect group plus there is a great deal of research to view on the net. Please don't ask me about it because I have no experience using it yet. But there are many members here who do have experience using TENS and other pain relieving methodologies. And for what I have read here and on Google, I believe I'll get relief.

We all suffer so much and we have no quality of life because of it. So when it comes to TENS to help relieve pain and suffering, I look at it this way. "When there is nothing to lose by trying, by all means try". I think it was the great positivist, W Clement Stone that expressed that theory ... or one of those greats I use to study through The Success Unlimited Magazine about 50 years ago. I especially hang onto the following theory, "Do the thing you fear and the death of fear is certain". Ouch! Have an excellent day. Hugs, CB

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@gus0557

Hi CB,
I also was taking nerve vitamins along with many prescriptions for nerve conditions. I have tried them all. Since nothing worked with me and my PCP was concerned with all the possible side effects of all medications I've tried, she finally told me to stop everything and just stay on the blood pressure medication. The new neurologist put me on 600mg of Alpha Lipoic acid. I've been on it for 2-3 weeks now. I saw her today and there are more tests I need to do. However, she definitely confirmed the large fiber neuropathy and the cervicaland lumbar radiculopathy. She is starting me on corticosteroids for 10 days with tapering doses and then I will start a new medication used for nerves and epilepsy. She still does not have the full picture as it was only the second time I'm seeing her. She is also referring me to a spinal orthopedic specialist to check on the horrendous pain in my right shoulder which is almost rendering my whole right arm useless and I am right handed. This could be form the cervical nerve being pinched at C7-C8. Plus she also referred me to a neuromuscular specialist who may have more answers. I guess we shall see and I am living day by day with each new day holding something different as far as neuropathy is concerned.
But believe me, no physical pain compares to the emotional pain of having to deal with the condition all alone. That in itself can take a major toll on a person.
So, this is my story so far. I feel each person with neuropathy can write a book on what they go through.
Thanks for your message and take care

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Sorry, Gus, I missed what you said in this passage and I need to address it. Gus said, "But believe me, no physical pain compares to the emotional pain of having to deal with the condition all alone. That in itself can take a major toll on a person."

Wow, so true, Gus. This is exactly where I stand (with no live body to talk to in person) and that's partially why I ran on and on incoherantly recently at this group. My best friend confident and older sister, died three years ago and I have no one anymore. I am so lost without her. I have no one who is on the same mental wave-length as me, especially when it comes to naturopathy healthcare. I have people from church and one semi-friend, but no trusting friend confident. I talk to the Lord and He guides me. But I'm a realist, and I need a human body to communicate with from time to time.

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@cb3

So true, we could all write a book about neuropathy and how it has turned our worlds upside down. I know your pain and I know your heartbeat. And I know how it feels to be alive but not living. And it's okay to be angry about it. Gus, we are positivists. We don't give up.

Lately I've been rattling on and on more than I should at this group. So I've decided to be more diplomatic. And I'll start here. Have you looked into TENS, the electrical nerve stimulator that helps relieve pain? My TENS unit should arrive today from Amazon. There is a lot of buzz about it at our Mayo Connect group plus there is a great deal of research to view on the net. Please don't ask me about it because I have no experience using it yet. But there are many members here who do have experience using TENS and other pain relieving methodologies. And for what I have read here and on Google, I believe I'll get relief.

We all suffer so much and we have no quality of life because of it. So when it comes to TENS to help relieve pain and suffering, I look at it this way. "When there is nothing to lose by trying, by all means try". I think it was the great positivist, W Clement Stone that expressed that theory ... or one of those greats I use to study through The Success Unlimited Magazine about 50 years ago. I especially hang onto the following theory, "Do the thing you fear and the death of fear is certain". Ouch! Have an excellent day. Hugs, CB

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Hi CB,
If in this group with all of us going through this condition we cannot vent out, then there is no other place in the world for us. You're not rattling on and on and on. We're all in the same boat and we only have each other for support since those around us have no clue nor have the desire to find out about the challenges of this condition. They simply don't care.
I just told another member as the saying goes: "what doesn't kill you will only make you stronger". We just have to adjust to try to cope with the condition and rely only on our own self and each other. That's all we have.
Day by day. Yesterday is history. Tomorrow is an unknown future. And there is wisdom hidden even in pain.
Take care and have a serene weekend,
gus

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@cb3

So true, we could all write a book about neuropathy and how it has turned our worlds upside down. I know your pain and I know your heartbeat. And I know how it feels to be alive but not living. And it's okay to be angry about it. Gus, we are positivists. We don't give up.

Lately I've been rattling on and on more than I should at this group. So I've decided to be more diplomatic. And I'll start here. Have you looked into TENS, the electrical nerve stimulator that helps relieve pain? My TENS unit should arrive today from Amazon. There is a lot of buzz about it at our Mayo Connect group plus there is a great deal of research to view on the net. Please don't ask me about it because I have no experience using it yet. But there are many members here who do have experience using TENS and other pain relieving methodologies. And for what I have read here and on Google, I believe I'll get relief.

We all suffer so much and we have no quality of life because of it. So when it comes to TENS to help relieve pain and suffering, I look at it this way. "When there is nothing to lose by trying, by all means try". I think it was the great positivist, W Clement Stone that expressed that theory ... or one of those greats I use to study through The Success Unlimited Magazine about 50 years ago. I especially hang onto the following theory, "Do the thing you fear and the death of fear is certain". Ouch! Have an excellent day. Hugs, CB

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Hi again CB,
In my own humble and worthless opinion, as with all other conditions or diseases, medications, therapies, etc... you name it, some things work with certain people and not do anything for others with same condition. Our bodies are so unique and different that we respond differently compared to others with same condition. One has to try and see if it might work and if not, then one has to stop. The scary part is the mysterious factor of side effects of whatever is tried if something doesn't work.
Take care,
gus

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@cb3

Sorry, Gus, I missed what you said in this passage and I need to address it. Gus said, "But believe me, no physical pain compares to the emotional pain of having to deal with the condition all alone. That in itself can take a major toll on a person."

Wow, so true, Gus. This is exactly where I stand (with no live body to talk to in person) and that's partially why I ran on and on incoherantly recently at this group. My best friend confident and older sister, died three years ago and I have no one anymore. I am so lost without her. I have no one who is on the same mental wave-length as me, especially when it comes to naturopathy healthcare. I have people from church and one semi-friend, but no trusting friend confident. I talk to the Lord and He guides me. But I'm a realist, and I need a human body to communicate with from time to time.

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Hello again CB,
Indeed, the psychological challenge of trying to cope with neuropathy is the most critical part of dealing with this condition. It is not easy, in fact quite difficult to find people that will just be there to offer support. I can suggest to you to check out the following website which you might already know about:
https://www.foundationforpn.org/
they do offer support groups along with video chats.
Yes, we do turn to GOD but GOD did not create us to be an island on our own. HE created us to love and be loved. On our own and alone, this will never happen. We all need another person. That's the essence of being realistic as you mentioned.
Take care and keep smiling,
gus

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