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What should I do? Carcinoid symptoms but no answers.

Neuroendocrine Tumors (NETs) | Last Active: May 11 10:05am | Replies (16)
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@parker27

I appreciate your response. Did you have any other symptoms besides flushing? Also, did you have any tests ( 5HIAA, chromogranin, etc) or scans that indicated the presence of a NET? The problem I am running into is I am only having the flushing, but no blood/urine tests or scans are indicating anything, so my doctor is not recommending me anywhere.

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Replies to "I appreciate your response. Did you have any other symptoms besides flushing? Also, did you have..."
vinnie694 | @vinnie694 | May 3 7:48am

I had sporadic diarrhea for quite a few years, the hot flashes pretty much started when I was diagnosed with NET’s.. the tumors were discovered after I had a CAT scan to validate my Diverticulitis attack, My GI doctor noticed the tumors on my liver. They were not there on a previous scan in 2017. She the sent me for a MRI, and after that a biopsy.. The results of the biopsy was neuroendocrine tumors.. Next was a PET scan to see if they could pinpoint where it started..
I know there was bloodwork in between but I’m not sure if any of the results would have pointed to the this Cancer..

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