Has anyone had granulomas? I believe that I have a few on/around my stoma. I see the Dr next week and will discuss then, but I was wondering if anyone had tips on how to clean/handle them.
I haven’t yet. I’ve left two messages with the wound ostomy nurses but haven’t heard back. I meet with my surgeon on Monday and I’ll talk to him about them. I’m only guessing that’s what they are.
I haven’t yet. I’ve left two messages with the wound ostomy nurses but haven’t heard back. I meet with my surgeon on Monday and I’ll talk to him about them. I’m only guessing that’s what they are.
I thought I had allergies. Started with all size big bumps, then red/purple rings began on my back, back of legs, stomach, and now creeping down my lower legs. My torso has faded some after 4 years. I got light spots on upper arms, but that stopped progressing. My legs are getting progressively worse. It is a mess. I have insane itching attacks and use creams, but if that doesn't work I have Atarax for severe times. This stuff can go on for years or even forever. I wear long sleeves and long slacks to hide it.
I am pretty certain that I have granulomas on my stoma. Has anyone ever had them removed surgically? I am hesitant to do that but I was advised by a wound care nurse who specializes in ostomy care that was the best solution. I have yet to see my surgeon about it. They interfere somewhat with sizing the hole in the barrier accurately.
I am pretty certain that I have granulomas on my stoma. Has anyone ever had them removed surgically? I am hesitant to do that but I was advised by a wound care nurse who specializes in ostomy care that was the best solution. I have yet to see my surgeon about it. They interfere somewhat with sizing the hole in the barrier accurately.
Yes, I have 4 of them. 2 of them are on my upper thighs and I can feel them when I touch on them. The other 2 are: spleen and my liver. I had a CT scan and they said they were benign. I would recommend getting a CT scan for it. The Pulmonologist is the Dr you need to see for it. Another Dr. you could see is a Rheumatologist, as granulomas can be connected to Auto Immune Diseases. I had a ultra sound done awhile back on the legs one and they said they were benign. Thank goodness! Does anyone here have an Immune Deficiency? I have CVID- Common Variable Immune Deficiency. My Immunologist says that some times my lung nodules can be associated with CVID and granulomas too. Just curious.... I don't think they typically do much with granulomas, unless they are causing pain. My Immunologist does want me to see a Genetics Dr. for the granuloma on my spleen.
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Hi @fastrategizer
There are a few discussions in the skin health regarding granulomas. I added them below for you to check out.
Granuloma annulare:
https://connect.mayoclinic.org/discussion/granuloma-annulare-1/
Granuloma annulare:
https://connect.mayoclinic.org/discussion/granuloma-annulare/
Been diagnosed with Granuloma annulare:
https://connect.mayoclinic.org/discussion/i-have-been-diagnosed-with-granuloma-annulare-my-type-is-generalized-which/
Mayo has given some good information regarding it.
https://www.mayoclinic.org/diseases-conditions/granuloma-annulare/symptoms-causes/syc-20351319
How long has this been going on? Are you currently on any medication that may exacerbate it?
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1 Reaction@fastrategizer, did you see your doctor about the granulomas? What was recommended?
I haven’t yet. I’ve left two messages with the wound ostomy nurses but haven’t heard back. I meet with my surgeon on Monday and I’ll talk to him about them. I’m only guessing that’s what they are.
Any update?
The surgeon and nurse confirmed what they were but were not concerned about them. Told me if they got worse to let them know. Thanks for following up
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2 ReactionsI thought I had allergies. Started with all size big bumps, then red/purple rings began on my back, back of legs, stomach, and now creeping down my lower legs. My torso has faded some after 4 years. I got light spots on upper arms, but that stopped progressing. My legs are getting progressively worse. It is a mess. I have insane itching attacks and use creams, but if that doesn't work I have Atarax for severe times. This stuff can go on for years or even forever. I wear long sleeves and long slacks to hide it.
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Like -
Helpful -
Hug
1 ReactionI am pretty certain that I have granulomas on my stoma. Has anyone ever had them removed surgically? I am hesitant to do that but I was advised by a wound care nurse who specializes in ostomy care that was the best solution. I have yet to see my surgeon about it. They interfere somewhat with sizing the hole in the barrier accurately.
@patsyh, did you see a surgeon in the meantime? What did you decide to do?
I have not seen a surgeon. I'm seeing some slight improvement so decided to wait a bit. I will post if i do see the surgeon.
Yes, I have 4 of them. 2 of them are on my upper thighs and I can feel them when I touch on them. The other 2 are: spleen and my liver. I had a CT scan and they said they were benign. I would recommend getting a CT scan for it. The Pulmonologist is the Dr you need to see for it. Another Dr. you could see is a Rheumatologist, as granulomas can be connected to Auto Immune Diseases. I had a ultra sound done awhile back on the legs one and they said they were benign. Thank goodness! Does anyone here have an Immune Deficiency? I have CVID- Common Variable Immune Deficiency. My Immunologist says that some times my lung nodules can be associated with CVID and granulomas too. Just curious.... I don't think they typically do much with granulomas, unless they are causing pain. My Immunologist does want me to see a Genetics Dr. for the granuloma on my spleen.