← Return to Supporting a friend with ALS

Discussion

Supporting a friend with ALS

Brain & Nervous System | Last Active: 2 days ago | Replies (6)

Comment receiving replies
@dlydailyhope

@alive
It would be good to communicate through email to share your memories of the past and thoughts. You can share what is going on in your life now. You can share pictures and videos of yourself/family/pets/home. Her eyes and ears are still functioning so anything visual and audible I’m sure would be appreciated.

Does she have family/friends locally that are helping her and can communicate on her behalf?

If you were able to do a FaceTime or Zoom call, you can create a way to communicate with eye movement (ask yes/no questions and have a way for her to respond with eye blinking, one blink for yes and two blinks for no).
https://www.youralsguide.com/family--friends.html

Jump to this post


Replies to "@alive It would be good to communicate through email to share your memories of the past..."

Thank you for your suggestions! I have a lot of fond memories to share with her. Yes, she lives with her husband and two adult children. They take an excellent care of her.