Connect
← Return to Optic nerve sheath meningioma, worried about results 3 month checkup
Discussion
Optic nerve sheath meningioma, worried about results 3 month checkup
Brain Tumor | Last Active: Aug 27, 2025 | Replies (15)Comment receiving replies
@santaflavia, one thing that might help your decision making might be where to stay. See this related discussion:
- Where to stay while having radiation at Mayo Clinic Rochester?https://connect.mayoclinic.org/discussion/lodginghousing/
The American Cancer Society Hope Lodge program provides a free home away from home for cancer patients and their caregivers. It also offers friendship and caring. (My father-in-law brought his guitar when he stayed at Hope Lodge during his treatment and was a hit among the fellow residents.)
https://www.cancer.org/support-programs-and-services/patient-lodging/hope-lodge/rochester-mn.html
There are also Patient Navigators in Rochester who can help: cecptnavigator@mayo.edu Phone: 1-507-266-9288
I hope a friend can accompany you.
Replies to "@santaflavia, one thing that might help your decision making might be where to stay. See this..."
Connect
Thank you Colleen. Yes, where to stay and who to stay with you as well....
I am quite "COVID" conscious, still, and so a congregate setting like the Hope Lodge with a shared kitchen is a bit scary for me as I also have Chronic Lymphocytic Leukemia and Small Cell Lymphoma which makes me more susceptible to infections.....I am taking two targeted therapies for CLL/SLL at this time and I have been told that I will have to quit those medications during the radiation treatment.....so, being immune compromised, I probably would be more comfortable someplace with an ability to cook in my room although I would miss out on the company and support of the Hope Lodge. Thank you for bringing this up.
My husband would be able to stay with me part of the time and I am trying to line up women friends who would be able to be with me the rest of the time. Thanks.