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Marfan's Clinic, undiagnosed, maybe EDS?

Bones, Joints & Muscles | Last Active: 1 day ago | Replies (5)
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@gzezulka

I'll be going to their clinic in Rochester! I've heard very good things about them, and reading the model of care definitely makes me feel better!

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Replies to "I'll be going to their clinic in Rochester! I've heard very good things about them, and..."
Jlharsh | @jlharsh | 1 day ago

Duh, you said June! 😀

One thing to keep in mind is that they are methodical about exploring all possibilities. You may need to see other doctors and that may take time. Be prepared to learn their process and let them walk you through it. How are you feeling now? Have they told you how long you will be there?

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