Gleason 9 dictates 24 months or more . Started ADT December 2022 :stopped ADT January 2025. Now I m still dealing with side effects. It stays in your body 253 days or 8.4 months/ my studies. After stopping the butt injection. So essentially I m still on ADT til it’s out of my body. Hope that’s not confusing.
Note that the OP's cancer is metastatic — that most-likely indicates ADT+ARSI forever, not just 24 months, though there's ongoing research and discussion.
The Gleason number predicts the risk of metastasis, so it's *almost* irrelevant once the metastasis has already happened (it's almost always an 8 or 9 at that point, as my oncologist explained when I asked).
Gleason 9 dictates 24 months or more . Started ADT December 2022 :stopped ADT January 2025. Now I m still dealing with side effects. It stays in your body 253 days or 8.4 months/ my studies. After stopping the butt injection. So essentially I m still on ADT til it’s out of my body. Hope that’s not confusing.
Yep, remember the Lupron/Trelstar stays in the body 253 days. Doc is checking PSA every 3 months. It’s Still in my body cuz I can’t grow any ELVIS sideburns yet.
Note that the OP's cancer is metastatic — that most-likely indicates ADT+ARSI forever, not just 24 months, though there's ongoing research and discussion.
The Gleason number predicts the risk of metastasis, so it's *almost* irrelevant once the metastasis has already happened (it's almost always an 8 or 9 at that point, as my oncologist explained when I asked).
So much controversy and just plain false info on PC I have found. This makes it nearly impossible for us PC sufferers to get solid info on what is really going on from any oncologists. One example : "Side effects of Lupron are very rare" from an oncologist. WTF! Sales pitch to get the very costly 6-7K shot. Great for the provider and patirnt with insurance,without really a bad deal.
SW
So much controversy and just plain false info on PC I have found. This makes it nearly impossible for us PC sufferers to get solid info on what is really going on from any oncologists. One example : "Side effects of Lupron are very rare" from an oncologist. WTF! Sales pitch to get the very costly 6-7K shot. Great for the provider and patirnt with insurance,without really a bad deal.
SW
Perhaps it was poor communication, and they meant *serious* side effects (e.g. heart attack, stroke, diabetes, bone fractures, death)? Just guessing.
Do doctors in the U.S. get a commission on the drugs they prescribe? It seems unlikely, but I don't know a lot about your system there. I would have assumed they bill the same for writing a $70 prescription as a $7,000 one. 🤷
So yes, the provider gets the $ full amount from insurance or patient with perhaps a poverty program from the provider.A golden egg for sure. So no, it was "side effects are rare" to quote. loads of quackery especially in the more rural oncologists' offices. Such is the land of PC,so many questions and so very few answers. Lots of "we don't know" as well, which is at least honest.
SW
So yes, the provider gets the $ full amount from insurance or patient with perhaps a poverty program from the provider.A golden egg for sure. So no, it was "side effects are rare" to quote. loads of quackery especially in the more rural oncologists' offices. Such is the land of PC,so many questions and so very few answers. Lots of "we don't know" as well, which is at least honest.
SW
So the doctor acts as their own pharmacist? They don't get the drug from a pharmacy?
Again, just curious. Here in Ontario, pharmacies are allowed a maximum markup of 8% on drugs under $1,000 and 6% on drugs $1,000 or over (that's in Canadian dollars). So for my monthly Orgovyx, which costs about CA $325 (US $235) per month, the pharmacy would make a maximum $24 profit, plus maybe a $5 dispensing fee. For my Erleada (close to CA $5,000/US $3,620 per month), the specialist pharmacy that provides it would make maximum CA $283 profit plus dispensing fee. The oncologist who prescribes both would earn no extra fee beyond the CA $34.10 for a follow-up visit.
So the doctor acts as their own pharmacist? They don't get the drug from a pharmacy?
Again, just curious. Here in Ontario, pharmacies are allowed a maximum markup of 8% on drugs under $1,000 and 6% on drugs $1,000 or over (that's in Canadian dollars). So for my monthly Orgovyx, which costs about CA $325 (US $235) per month, the pharmacy would make a maximum $24 profit, plus maybe a $5 dispensing fee. For my Erleada (close to CA $5,000/US $3,620 per month), the specialist pharmacy that provides it would make maximum CA $283 profit plus dispensing fee. The oncologist who prescribes both would earn no extra fee beyond the CA $34.10 for a follow-up visit.
I read in more than one webpage that Orgovyx can cost almost US$3,000 in the United States (example below). Is this true? I also read that it can be "free" as a Medicare benefit after a patient has spent his maximum for the year. https://www.drugs.com/price-guide/orgovyx
Orgovyx (relugolix) is a member of the gonadotropin-releasing hormone antagonists drug class and is commonly used for Prostate Cancer.
The cost for Orgovyx 120 mg oral tablet is around $2,959 for a supply of 30 tablets, depending on the pharmacy you visit. Quoted prices are for cash-paying customers and are not valid with insurance plans. This price guide is based on using the Drugs.com discount card which is accepted at most U.S. pharmacies.
Orgovyx is available as a brand name drug only, a generic version is not yet available.
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Note that the OP's cancer is metastatic — that most-likely indicates ADT+ARSI forever, not just 24 months, though there's ongoing research and discussion.
The Gleason number predicts the risk of metastasis, so it's *almost* irrelevant once the metastasis has already happened (it's almost always an 8 or 9 at that point, as my oncologist explained when I asked).
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4 ReactionsHi, you stopped all medications now?
Yep, remember the Lupron/Trelstar stays in the body 253 days. Doc is checking PSA every 3 months. It’s Still in my body cuz I can’t grow any ELVIS sideburns yet.
I ll keep ya updated when they check my PSA in July. Mushrooms taste good too on a daily basis.
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2 ReactionsThanks for checking @surftohealth88 - posted an update here so Not to hijack this thread https://connect.mayoclinic.org/comment/1294509/
So much controversy and just plain false info on PC I have found. This makes it nearly impossible for us PC sufferers to get solid info on what is really going on from any oncologists. One example : "Side effects of Lupron are very rare" from an oncologist. WTF! Sales pitch to get the very costly 6-7K shot. Great for the provider and patirnt with insurance,without really a bad deal.
SW
Perhaps it was poor communication, and they meant *serious* side effects (e.g. heart attack, stroke, diabetes, bone fractures, death)? Just guessing.
Do doctors in the U.S. get a commission on the drugs they prescribe? It seems unlikely, but I don't know a lot about your system there. I would have assumed they bill the same for writing a $70 prescription as a $7,000 one. 🤷
So yes, the provider gets the $ full amount from insurance or patient with perhaps a poverty program from the provider.A golden egg for sure. So no, it was "side effects are rare" to quote. loads of quackery especially in the more rural oncologists' offices. Such is the land of PC,so many questions and so very few answers. Lots of "we don't know" as well, which is at least honest.
SW
So the doctor acts as their own pharmacist? They don't get the drug from a pharmacy?
Again, just curious. Here in Ontario, pharmacies are allowed a maximum markup of 8% on drugs under $1,000 and 6% on drugs $1,000 or over (that's in Canadian dollars). So for my monthly Orgovyx, which costs about CA $325 (US $235) per month, the pharmacy would make a maximum $24 profit, plus maybe a $5 dispensing fee. For my Erleada (close to CA $5,000/US $3,620 per month), the specialist pharmacy that provides it would make maximum CA $283 profit plus dispensing fee. The oncologist who prescribes both would earn no extra fee beyond the CA $34.10 for a follow-up visit.
I read in more than one webpage that Orgovyx can cost almost US$3,000 in the United States (example below). Is this true? I also read that it can be "free" as a Medicare benefit after a patient has spent his maximum for the year.
https://www.drugs.com/price-guide/orgovyx
Orgovyx (relugolix) is a member of the gonadotropin-releasing hormone antagonists drug class and is commonly used for Prostate Cancer.
The cost for Orgovyx 120 mg oral tablet is around $2,959 for a supply of 30 tablets, depending on the pharmacy you visit. Quoted prices are for cash-paying customers and are not valid with insurance plans. This price guide is based on using the Drugs.com discount card which is accepted at most U.S. pharmacies.
Orgovyx is available as a brand name drug only, a generic version is not yet available.
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Like -
Helpful -
Hug
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