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Does anyone have EPI (Exocrine Pancreatic Insufficiency)?
Digestive Health | Last Active: 2 days ago | Replies (238)Comment receiving replies
Hi
I have the EPI which requires Creon - expensive. In addition to that, I have developed SIBO (small Intestinal Bacteria Overgrowth. I think the two are related, with the SIBO creating the problem of constipation, diarrhea and lots of gas. That leads to trying to defeat the SIBO problem with expensive antibiotics. The antibiotics fixes the problem in the short run, but it comes back. I have not found a long term solution and I’m trying to work through fighting the SIBO. Sorry but I don’t have a good solution for you. There are other other enzymes pills etc but they are very weak compared to what I need for the EPI, thus I’m still on Creon.
Replies to "Hi I have the EPI which requires Creon - expensive. In addition to that, I have..."
Have you ever tried oil of oregano for your SIBO? I think I have that, but I’m not sure, and I’ve been looking up remedies for it because I don’t like to take antibiotics. Just a thought. Good luck.
Did you try being on a VERY strict Low FODMAP diet? It helped immensely. I am having improvement with 6 meals a day, but the hardest part is staying down at 1600 calories, as well as small portions. It is easy to eat too much of something and have issues, as you described. I am on Creon as well, and take one dose with each meal. There is still some gas/constipation/diarrhea overflow, but the improvement is significant for now, fingers crossed.
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I think I might have SIBO as well. I’ve been doing some research for it, and it looks like oil of oregano is as effective as antibiotics, and in some cases more effective. Have you ever tried that? I haven’t been diagnosed with it officially, but I’m almost positive that’s what I have. Apparently the oil is quite strong and you’re supposed to be under a doctor’s care when you use it and make sure you get the right kind of course, but it sounds intriguing to me. Good luck.