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Platelets Too Low for Chemo Infusion
Gynecologic Cancers | Last Active: Jun 25 11:21am | Replies (39)Comment receiving replies
Thank you both sooo much for your kind words of advice and encouragement. I have felt so alone on this journey and often times am left to find my own answers to questions because I feel like my oncology team gets annoyed with me when I ask them questions. Or I don’t know what questions I am supposed to ask because I’m given just enough incomplete information that I try to do my own research and then end up spinning out. (In this instance it was like, “yes your numbers are really low and yes you should be worried about it. Enjoy your day.”) I had to research myself to find out that transfusions might be an option for me and that this doesn’t mean that the treatment isn’t working or I can’t do the rest of my chemo and/or surgery. I’m crying as I type this (tears of relief this time!) because for the first time since this nightmare began, I feel like have people who understand what I’m going through. From the bottom of my heart, thank you. < 3
Replies to "Thank you both sooo much for your kind words of advice and encouragement. I have felt..."
@korinja I share the same feelings. Being all alone. Asking too many questions and still having to research. What I've discovered is frightening. They don't tell you everything. It's a place that is so isolating and much is left to the unknown. Yet here you are. Still going. Still self advocating. Seeking the truth. Wanting to live. I'm totally with you. I'm deeply saddened to read your journey with cancer care teams who tell you to have a nice day. Yet there are so many like myself who totally understand what you're going through. I'm here to support you!!! Keep going. xx Linda from Long Island, New York.
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There’s a very steep learning curve at the beginning of this journey! You will get used to it eventually. You also will build a rapport with your care team so that you do feel more comfortable asking questions. I’ve known my oncologist for 15 years, and have seen him very frequently throughout that time. I’ve even asked him to come to my funeral! He was not flippant, but genuinely said he would really try. I was very serious. He has become a good friend.