I have had 2.5 months of severe pain in my left neck from my shoulder up behind my ear. I had trouble sleeping due to stabbing pains when moving. In the end, I had trouble getting dressed/undressed. I have poor follow-up, I can write to a doctor at the medical and vascular clinic but nothing happens anyway so I ignore it now. You need peace of mind. Suddenly I feel better for a couple of days, less headache, only slight pain in the left neck vessel (I have FMD in both carotid vessels and in the basilar artery in the brain). Always loud tinnitus but I have gotten used to it, only sometimes when it changes tone with clicks or short silences etc. do I get worried. I feel grateful for less pain that gives me peace of mind. It goes up and down all the time and it can never be good but you have to make the most of this moment. Hugs to those of you who are having a tough period now🙏