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Lanreotide side effects

Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (9)

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@cmhgiddy24

Hi, I SO feel for your partner! I have primary pancreatic net, liver mets. and had surgery 10/23 to remove pancreatic tail and most mets in my liver. I 've also been on Lanreotide every 4 weeks since 1/24. This Feb. I began every 3 weeks because my liver mets had progressed a small bit. Every shot I have had, don't know if its the cancer or the shot, everything seems to freeze up both digestively and bladderwise, with lots of stomach cramping, bloating and misery for a week after. In Mar. , even though fecal testing has shown negative for me, I was put on Creon for Exocrine Pancreatic Insufficiency (EPI). I guess it's pretty common when you have pancreatic surgery for your pancreas to quit making digestive enzymes. This has REALLY helped me, even though I still have some issues re: dosing. I also eat light meals of very bland food like rice, toast, crackers for a few days after shot. Fiber and fats also seem to aggravate things. Magnesium at bedtime helps for sleep and resuming regularity. I would ask her drs. about that. Also, though Creon is expensive. If your partner is on Medicare, United Healthcare Medicare RX plan will cover it totally with the exception of your initial yearly deductible. This is huge! Hope what I've had to say will help and save a bit of time too. God Bless you & her on this journey!

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Replies to "Hi, I SO feel for your partner! I have primary pancreatic net, liver mets. and had..."

Thanks so much. Had not heard of the Ecocrine Pancreatic Insufficiency & also that fiber could be a problem (has been adding fiber to diet). Thanks on Creon & on the magnesium idea. Appreciate the help and sending strength your way