← Return to Prolia dangers for those with autoimmune disease

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@starseed

Thank you. I think I’ve taken everything available for A I disease in the past 14 yrs but nothing that caused anything near the reaction Prolia has.

I’ve not taken anything that wasn’t reversible or that couldn’t be diminished, including low dose chemo.

It’s shocking to be in this position with no way out & the potential for worsening.

I’ve pushed back on osteo drugs since for 10 yrs, after life-saving quantities of steroids caused orthopedic fallout. I really believed my bones would reverse (they did). But I started steroids again last fall & treatment was urged.

I usually examine a new Rx from every angle but grew tired & complacent. Believed the NP. I have a terrific Rheum & her NP has earned some treatment freedom so I rolled with it.

Who would guess that a little injection designed to help bones would cause a cascade of AI nightmares? Now I know about all the class action lawsuits & why. I never even looked in that direction.

Thanks so much for your kind feedback. I hope you always do well with topical treatment for psoriasis!

I wish I could see Mark Hyman for my fx doctor! I’ve been a follower since he started. EVERY MD should practice functional medicine!

BTW I’m in So Cal between some very well known institutions but they’ve little to offer. Might be going to Scripps though.

Most drs these days don’t want to deal with “complex” cases. (In other words they don’t want to be forced to think 😉 I need a thinker!

Again, I appreciate your support.

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Replies to "Thank you. I think I’ve taken everything available for A I disease in the past 14..."

After suffering terrible side effects from Prolia I got off after one injection-then my endocrinologist put me on actonel once a week and I now have a swallowing reflux problem-even after stopping it a couple of months ago. I am done with all these osteoporosis drugs- I exercise vigorously, have lots of calcium naturally and always looks down when I am walking. My bone scan showed some osteoporosis.