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Neuroendocrine Tumor - no treatment plan method

Neuroendocrine Tumors (NETs) | Last Active: Feb 6 9:39am | Replies (86)
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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @meleve and welcome to Mayo Connect. I can certainly understand your concern after your oncologist said that this wasn't cancer. I would highly recommend that you seek a consultation with a NET specialist to be assured that you are getting the best treatment and follow-up. If you are able to get a consultation at one of the Mayo Clinic facilities that would be good. Here is a link with information on obtaining an appointment. http://mayocl.in/1mtmR63

If an appointment at Mayo is not possible for any reason, then I recommend that you seek out another NET specialist. Here is a listing of NET specialists from the Carcinoid Cancer Foundation website, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

I look forward to hearing from you again. Will you post again about your follow up and possible second opinion?

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Replies to "Hello @meleve and welcome to Mayo Connect. I can certainly understand your concern after your oncologist..."
meleve | @meleve | Apr 30, 2025

Thank you so much for this helpful information. I will definitely seek a second opinion and post a follow up

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panorman3 | @panorman3 | Jan 30 5:33pm

@hopeful33250 i have a carcinoid tumor in my mesentery doctor is using "the L shot" says it is two hard to reach so no operation. i tried to get through to you guys but was not successful.
Thanks Rev. Paul Norman sr

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