Hello @meleve and welcome to Mayo Connect. I can certainly understand your concern after your oncologist said that this wasn't cancer. I would highly recommend that you seek a consultation with a NET specialist to be assured that you are getting the best treatment and follow-up. If you are able to get a consultation at one of the Mayo Clinic facilities that would be good. Here is a link with information on obtaining an appointment. http://mayocl.in/1mtmR63

If an appointment at Mayo is not possible for any reason, then I recommend that you seek out another NET specialist. Here is a listing of NET specialists from the Carcinoid Cancer Foundation website, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

I look forward to hearing from you again. Will you post again about your follow up and possible second opinion?