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L2 – S1 spinal fusion pain questions

Chronic Pain | Last Active: May 17 12:09pm | Replies (22)

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@lrpreston

I had L2 to S1 fused February 13, 2025 and a month later I had developed a huge seroma and they had to go in and drain and clean it out, then I spent a week in the hospital hooked up to IV antibiotics and pain meds. I was sent home on 4mg Dilaudid every 4 hours which I had been on since my February surgery then a week later the Neuro Nurse practitioner said his hands were tied and he couldn't give me any more pain meds and I need to see my regular doctor for more (mind you this was 4pm on a Friday) so I went from Dilaudid to just tylenol for pain until the following Tuesday when I could see my regular doctor. She said her hands were tied and she couldn't give me anything for my pain and sent me back to Neuro again. By now I had been without pain meds for 2 weeks and I was in excruciating pain. He decided to send me to the addiction pain program to see if they could help. I said "don't you have to be addicted to something to go see them?" I was pissed because the only thing I was on was Tylenol (and that's like giving someone a lollipop and saying it will take all your pain away) The addiction pain people asked me when the last time I used meth or other street drugs was and if I've had to steal from people to get money for my street drugs. I have never used any drugs other than what my doctor has prescribed and I take them exactly as directed. She said they don't usually see people that aren't already addicted to something but she gave me some sort of tiny wafers that you put in your cheek to dissolve. All it did was give me bad headaches so she suggested going back to my primary doctor for pain meds (back to square one!) I finally saw someone who was willing to give me Lortab 10 to take every 8 hours for pain. It helped a little for about 3 hours then I was back to excruciating pain. She changed me to Oxycodone 10mg every 4 hours as needed and that isn't helping much either. Anyway, since my surgery things have been getting worse instead of better. I'm having a lot of pain in my right hip to the point of (in the last couple of days) barely being able to put any pressure on my right leg without crying. I've gone back to using my walker to get around (and it still isn't going well) I feel like my right hip is broken. Do any of you have this problem? Is it possible they pushed my hip out of alignment when they did the fusion? They have done a CT scan and they say everything looks fine and it's probably just my nerves causing problems because they were compressed for so long and it's just going to take time for them to heal. It's just, when they do a CT or MRI they have you laying down with a wedge under your knees and that position usually makes my pain less (that's pretty much the only position I can be in these days that helps my pain some) is it possible they don't see anything because when I'm in that position things align better? I don't know what to do because the pain is so bad I can't do anything. I'm doing most of my work from home right now but I have to go into the office to do bills and stuff. (I work for a local Plumber's and Pipefitter's Apprenticeship Program as their administrative assistant) and right now my doctor says no more than 2 to 3 days a week for 1 to 3 hours a day in the office and last week I had to work 3 days in a row for about 5 hours each day and I worked again on Monday for about 5 hours (I cried a lot while I was doing my work) my boss asked if I would be back on Tuesday but I told him no because I'm just in too much pain. He wasn't happy about that. When I got home from work I had to call my daughter out to the car to help get me back in the house because I could hardly walk. Since then my pain has gotten worse and I can't get out of bed or put any pressure on my right leg. Is this just a normal part of this kind of surgery or could it be something more? Does anyone have any advice on what to do? I've tried lidocaine patches and they don't do anything. I've had gastric surgery so I'm not supposed to take ibuprofen or any other NSAIDS. This pain is debilitating and excruciating and it certainly isn't helping my depression issues either. Has this happened to anyone else? If so, what do you do about the pain? Is there anything that can be done for the pain?

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Replies to "I had L2 to S1 fused February 13, 2025 and a month later I had developed..."

Peter Attia has a podcast called the Drive and he just did a segment on chronic pain that you might find helpful. Pain patients are treated with so much judgement...I am so sorry this has happened to you. If you're comfortable sharing where you had your surgery I'd be interested.

I had L4-S1 fused in Oct 2024 and was in excruciating pain for 3 months. Still alot of pain since then. In April my surgeon ordered a Myelogram where they stick a needle in your back and injected dye. In this MRI they stand you up so they can see what is happening with gravity on your back. His X-ray at the office showed everything in position but the Myelogram showed loose screws and a non-union at l5-s1. So I never fused, also scar tissue building up and pressing a nerve down. My point is this….get a Myelogram. When you get it, go home and lie flat all day and night and you probably won’t get the migraine that sometimes occurs.