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Addressing the psychological impacts of neuropathy

Neuropathy | Last Active: 1 day ago | Replies (47)
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@andyjustin

I know it’s hard to make family friends and loved ones really understand how debilitating neuropathy can be it, invade your thoughts, your body, and your soul and I’m beginning to believe that it’s impossible to make people really understand the weight the burden we all suffer at times I believe that’s why these chat rooms are very important. I know it makes me feel less alone and regardless to the façade I put on to all those around me not letting on how uncomfortable my symptoms can be thinking that they will think that I’m just crying wolf bottom line if you don’t have neuropathy and it’s many forms you can’t understand it at least that’s the way I see it

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gus0557 | @gus0557 | 6 days ago

Hello Andy,
Believe me that, sooner or later, people like us trying hard to cope with this insane condition will eventually get to a point of not really caring one way or the other what people around us may or may not think. Whatever they think or not think will not have any effect on changing what we're going through. No one knows what a certain pain is except the one going through that pain. Unfortunately, we put too much into thinking that the closest people to us, be it family or friends, will get out of their stupid boxes and try to find out about what we're going through. Sadly enough, the state of the world today is: me, myself, and I. Caring and compassion are evaporating from people's vocabularies. No wonder the world has come to such a chaotic state where only the dollar is making people dance.
It's never easy, but we need to move on as best we can and stop looking for care from anyone. And like you said, this chat platform is probably our only sanctuary.
Have you by any chance looked into the Foundation For Peripheral Neuropathy. You might want to check out their website: https://www.foundationforpn.org/support-groups/
take care and please stay in touch.
gus

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