Two things I think many of us share with autoimmune diagnoses: The long time it takes to get a diagosis and problems with brain fog. I think your example is very clear! I became ill when I was 30. I was told "it's all in your head", sent to psychiatry, told nothing was wrong with me, etc. I didn't get a diagnosis of Sjogrens Syndrome and R.A. until I was 52! I'm hoping things are more clear now but I know there is a big shortage of rheumatologists. While I was going through all those many years, I realized I had to find peace and joy in my life, even just a little every day to be able to cope. I knew I couldn't wait until I got diagnosed to begin my life.
Brain fog: In my case it is all due to extreme fatigue. My spouse just asked me today, Why are you so confused? Well, I'm so exhausted inside that I cannot sort out many things at once. People call this multi-tasking, I call it overwhelm! You deserve to slow things down. I've had it on and off for many years and I became a poet, stayed married 36 years, learned that my brain is going to be different than others because I'm fighting 4 autoimmune illnesses and treatments, medications for them.
My biggest suggestion of all: I sleep for an hour every single day in the late afternoon. No appointments, phone calls, anything. My brain needs this to recharge.
The hour in the PM really helps! My doctor and I were at whit's end trying to help with the fog and fatigue! We finally tried the hour nap and I'm doing so much better!
I grew up being a morning person, now I find I am much better in the PM!
I take my nap around 12-1 and it gives me more time to enjoy myself in the afternoon!
Good Luck!
Sundance, aka, RB