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CIDP and concerns about treatment risk factors

Neuropathy | Last Active: May 5 6:26am | Replies (22)

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@mafalda

Hi, I have been dealing with CIDP for about 5 years now. I have been in Prednison, Ivig transfusions, etc. The treatment that worked the best was physiotherapy. I cant emphasize enough how exercising the legs and arms made them strong and resistant to weakness. I was also lucky finding a physiotherapist that would strong massage the legs prior to exercise. That was a recipe for success.
But, I'm talking of serios exercising. I did it for a couple of hours DAILY! 24/7 for over a year, then I had 1 day off then 2 days off. keeping it at a five days a week exercising, weights, bands, etc. I got completely out of pain, imbalance, etc. Wish I know about this before!

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Replies to "Hi, I have been dealing with CIDP for about 5 years now. I have been in..."

I agree with the importance of massage, and I receive what I would classify as "strong".

My instructions to the therapist were to approach it "as if" the massage could affect the nodular, nerve lesions adjacent to the spine.

Thank you so much for sharing; I am not opposed to exercising at all. Knowing what you have achieved will give me the determination to follow suit, because the weakness is the worst at this stage of my CIDP. Thank you again and I wish you continued success and healthy healing.