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← Return to Starting pre-tests for CAR-T infusion for multiple myeloma
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Starting pre-tests for CAR-T infusion for multiple myeloma
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 10 9:37am | Replies (28)Comment receiving replies
This is fantastic news, @4health4bonnie! You have no idea how encouraging this update will be for anyone going through CAR-T Cell therapy! Recovery can’t be rushed, which can be frustrating when you want to feel 100% right away. But I think you’re able to really get a sense of your steady daily improvement over the past month, which is awesome! What’s been your most difficult challenge?
Replies to "This is fantastic news, @4health4bonnie! You have no idea how encouraging this update will be for..."
I saw my oncologist today. She is very happy with my tests results, and she said I was doing great. I feel fairly normal. My platelets are coming up and my neutrophils were ok after seven days - over 1000 but not quite normal, so Im still getting growth factor shots. My next one may be in eight days after my last one. Maybe I wont need one! Very happy that car t is working!
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Feeling fatigued. I also had an itchy back and having a picc affected my ability to sleep. I have been really lucky only having high fevers for 24 hours. I was in the hospital for five days.
Also, I am getting tired of the isolation. Not being able to drive will be challenging the next three weeks. I had my caregiver before to shop etc. i think I have found someone to help me.
I also miss my doggies who are home in Roseburg. I am so happy car t is working! Its worth all of it!