Hi CB,
I also was taking nerve vitamins along with many prescriptions for nerve conditions. I have tried them all. Since nothing worked with me and my PCP was concerned with all the possible side effects of all medications I've tried, she finally told me to stop everything and just stay on the blood pressure medication. The new neurologist put me on 600mg of Alpha Lipoic acid. I've been on it for 2-3 weeks now. I saw her today and there are more tests I need to do. However, she definitely confirmed the large fiber neuropathy and the cervicaland lumbar radiculopathy. She is starting me on corticosteroids for 10 days with tapering doses and then I will start a new medication used for nerves and epilepsy. She still does not have the full picture as it was only the second time I'm seeing her. She is also referring me to a spinal orthopedic specialist to check on the horrendous pain in my right shoulder which is almost rendering my whole right arm useless and I am right handed. This could be form the cervical nerve being pinched at C7-C8. Plus she also referred me to a neuromuscular specialist who may have more answers. I guess we shall see and I am living day by day with each new day holding something different as far as neuropathy is concerned.
But believe me, no physical pain compares to the emotional pain of having to deal with the condition all alone. That in itself can take a major toll on a person.
So, this is my story so far. I feel each person with neuropathy can write a book on what they go through.
Thanks for your message and take care