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Replies to "Never feel stuck because there are other options out here plus if you’re able to do..."
Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (11)
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Never feel stuck because there are other options out here plus if you’re able to do some research and find you another doctor as well. I see a lot of people on here have suggested that you see a NETS Specialist that specializes in Neuroendocrine tumors would a great place to start.
Replies to "Never feel stuck because there are other options out here plus if you’re able to do..."
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It is enormously frustrating to feel you are not doing/getting all that you can.
I have an Oncology team and my Oncologist knows a lot about NETs, however, with my own research, I found Histotripsy (not offered in Canada) and she went along with that (it helped reduce growing tumors). Research is essential because findings come out frequently and provide options.
Good luck and try to be positive because this is typically a slow growing cancer which will give opportunities of new developments.