What diet or food tips for good nutrition after esophageal cancer?

Posted by ilovefrank @ilovefrank, Apr 29 2:36pm

My hisband had espohogeal Cancer, chemo, sucessful surgery, and follow up chemo and immunotherapy now. He eats pretty well, but now Doc suspects stricture in his throat and that they can do the dialations - which I found good info on in another discussion.
He's down to his high school weight but doesn't want to lose any more. I'm wondering if anyone has worked with a nutritionist who understands what is really needed and possible to get optimal nutrition (not just adding fat and sugar which is mostly what I'm finding). He can eat most things, but avoids anything to rough. He loves bread but it seems to cause problems some of the time. To make things easier to his sytem to absorb, we've been choosing more vegetarian protiens. We'd love to learn from your wisdom!

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

Lovefrank
I had esophageal cancer several years ago and could not swallow anything but sips of water due to tumor in lower esophagus. I lost about 15 pounds before they put in feeding tube and got me on Isosource canisters for nutrition which worked. I had chemo and radiation and the tumor went away without surgery.
Have you talked to docs about a feeding tube to help with getting your husband enough nututrition?
Don

REPLY

I am a 74 yo female who can relate to all that you have submitted. 1 yr since diagnosis, 6 mnths since surgery. No big probs, but big 40+ lb wt loss and the swallowing/dilations have been the biggest issue for me. It's been a learning exp. My Dr. is not concerned about wt loss (hi sch weight)...and I'm still quite active and feel better w/ wt loss. How it translates for men, I'm not sure. Don't like hi prot cott cheese, but if you whip it you don't get as strong of a flavor. Lots of prod's on market now adays have helped. Grd meats, small bites, but it's a diff lifestyle than what I've don't for 40+ years, so give it time.

REPLY

Hi there ilovefrank,

My husband is one week post chemotherapy, after the same treatment plan you guys experienced.

We met with a dietician early on (pre-surgery) and she asked for us to meet with her again at the end of treatment to help with life/post-cancer eating. After all the interventions, still no taste, cold sensitivity, no appetite, but he's trying to eat as much protein as possible. He has also lost more weight than wished. Everything is different, what to eat, how to eat, how much to eat...

Maybe there is a dietician in your area who can advise also? Our appointment is next week.

Best of all to you both,
Carrie

REPLY

I have worked with a nutritionist, which has been marginally useful. I seem to know what ai can eat better than they do. And if one more person tells me I can eat mashed potatoes, I will pull out the rest of my hair!

To address this, I started a group on Facebook called Soft Foods Exchange and Support. And my favorite soft food cookbook is “Soft Foods for Easier Eating Cookbook” by Sandra Woodruff.

REPLY
@alberton1

I am a 74 yo female who can relate to all that you have submitted. 1 yr since diagnosis, 6 mnths since surgery. No big probs, but big 40+ lb wt loss and the swallowing/dilations have been the biggest issue for me. It's been a learning exp. My Dr. is not concerned about wt loss (hi sch weight)...and I'm still quite active and feel better w/ wt loss. How it translates for men, I'm not sure. Don't like hi prot cott cheese, but if you whip it you don't get as strong of a flavor. Lots of prod's on market now adays have helped. Grd meats, small bites, but it's a diff lifestyle than what I've don't for 40+ years, so give it time.

Jump to this post

Kinda hard to read with all your self-defined abbreviations!! Sorry!!
Hi sch?
Prot cott?

REPLY

I had my esophagectomy last November 1st and ate well until the first part of February. I suddenly had major problems swallowing and eating and drinking anything. We thought it was a stricture at first, but it turned out to be gastroparesis. My GI doctor thinks it was because the Botox shot I received during surgery had worn off. I'm currently taking Reglan and Mertazaprine and no longer have any issues. Ask your doctor about the possibility of gastroparesis.

REPLY
@deserthykr

Kinda hard to read with all your self-defined abbreviations!! Sorry!!
Hi sch?
Prot cott?

Jump to this post

Hi sch = high school since the original email referenced weight loss since original message stated weight loss as it related to his high school weight.

Pro cott = protein cottage cheese; cottage cheese is one of the highest ways to receive high protein foods. But I actually meant 'I don't like cottage cheese in any form' but when blended you don't get the yucky taste as I and others have experienced.

Sorry, will change my word usuage.

REPLY

Newly Diagnosed, I am at my normal weight now and am starting treatments. I can't really lose any weight from the start. So I found a product on Amazon called NakeMass it is a protein shake style mix. It comes in a plant base formula and one shake will give you 1230 cals. It also comes in a non plant base too. I think I am going to need 3000 or more cals a day to try and maintain my weight. I'm able to eat regular food right now but I have discussed this with my doctor and we believe there will come a time for me to drink these shakes to maintain my weight hopefully it works. Just thought I would pass that along if someone is trying to gain weight it might help. Good Luck and prayers to everyone.

REPLY
Please sign in or register to post a reply.