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39 year old brother

Pancreatic Cancer | Last Active: 2 days ago | Replies (25)

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@gamaryanne

Have you met with Cedars Sinai yet? Over a year ago I met with a wonderful doc there that had fellowed with well known doc at Johns Hopkins, Dr Laheru. He turned me on to a clinical trial. Also, a short distance from you is Dr Erkut Borazanci. Excellent in this field, well known. I have met with him and hope to fly out to see him in June. He is in Scottsdale and associated with Honor Health Institute as well as TGEN.
My son’s family was at the Anaheim Purple Stride and we had a great team at our Atlanta Purple Stride. Way to go!!!

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Replies to "Have you met with Cedars Sinai yet? Over a year ago I met with a wonderful..."

Thanks gamaryanne! Is that you with your arms outstretched? If so, you look great! How did your son enjoy walking in the rain??? Mine walked with me and never complained once and he had no hat or umbrella. I appreciate the suggestions. Cedar Sinai would be my choice, but it’s just too far to drive for me every 2 weeks. At this point we don’t know where the growth is. I was told back in January that the areas in my liver were inflammation, but it’s hard to tell from my recent CT reading but whatever it is is actually decreasing. Dr going to ask tumor board if he can order a MRI (I don’t understand why he has to ask them and I couldn’t ask because dr perturbed with me for not wanting to go on clinical trial right now. Peritoneal areas need MRI to see better, he says. I’m closer to UCI and I was going to post my question on this forum to see if anyone knows of a good oncologist there. Are you talking about g about the RM clinical trial? I thought that didn’t work for you? You look like you are doing great - keep up good work!