← Return to Total pancreatectomy challenges
DiscussionTotal pancreatectomy challenges
Pancreatic Cancer | Last Active: Jun 14 1:49pm | Replies (14)Comment receiving replies
Replies to "Hi Matt Thank you for sharing your journey. Can you explain what you mean by “..."
Hi @lar38 -
I weigh a bit over 200 #'s and have taken 3 (36,000) Creon with each meal and 1 (36,000) with my snacks. I have not experienced a lot of diarrhea. Taking just 1 seems low to me. There is a Creon dosage chart at http://www.creonhcp.com/dosing-calculator. It indicates that at 68kg you should consider taking 1-5 (36,000) at meals and 1-3 for snacks. If it were me, I would increase my meal dosage by one capsule and see how that goes for reducing symptoms. This is why he is losing weight probably, because of lack of absorption. He should try snacking in between meals with a creon dosage to help regain some of his lost weight if he is underweight, at least that is what I would do.
When I had this operation, I pushed the endocrinologist to get me started with the Tandem pump and Dexcom sensor, which acts like an artificial pancreas, to a degree. Pumps and sensors are the best option for blood sugar control for patients like us. Initially, I was using insulin pens and I was not able to keep my blood sugar levels under control and my A1C was higher than it needed to be. The pump allows you to extend your insulin bolus, as needed. For example, if I'm going to eat a meal with 50g of carbs, the carb ratio for me is use 1 unit of insulin for 15 g of carbs (this differs for each diabetic throughout their diabetic journey) so my pump would want me to take a little over 3 units of insulin. I can set an extended bolus for meals that contain more fat because fats slow the digestion. As a result, I can choose to have 60% of my insulin immediately and then over a period of time, say 2 hours, I can have my pump deliver an additional 40%, the remainder of the 3 units of insulin. This helps tremendously to reduce glucose spikes and reduces the A1C results. My last A1C was 5.9, and normal levels are up to 5.6. If you are diabetic it is my understanding that they would like your A1C to be under 7.0.
I hope this helps. Please let me know if I can offer further assistance.
Matt