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Addressing the psychological impacts of neuropathy
You know, I read a lot of posts about the pain and medication and dealing with the pain physical. I don’t see a lot of post dealing with the psychological aspects about the daily grind about the amount of time we spend thinking about our pain and weighs on our thought processes and interrupts Our ability to act in clearheaded manner, I spend hours a day sometimes in a very dark place, thinking about the ramifications of my autonomic neuropathy and mood swings. How my neuropathy affects my ability to socialize sometimes and interact with others when I try to go to sleep at night and I hear ringing in my ears and my thoughts take me or make me think about what symptoms going to come next what ability I’m going to lose How it’s impossible to make Those close to me understand how challenging this can be living with one autonomic neuropathy
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Talk about psychological frustration. I’m on Medicare MVP I have to say how ridiculous it is and how stressful it could be every time my doctor submits medication they deny it so what does that mean? It means my doctor sends in the medication I need and then some asinine doctors review it and decide maybe I don’t need it Now. Luckily, I can afford to pay for medicines, but there are many people out there who can’t and struggle with this asinine policy of Medicare and Medicaid you know I can understand how people get upset and do crazy things for one fortunate enough again to be able to pay for my medication And also have underlying medical insurance which for the most part does Jack shit anyway talking about the physical, working its way into the psychological spent hours on the phone today. Don’t understand how anyone would want to work the phone banks to tell people that they’ve been denied one of the medications I take Actually too actually three gabapentin pregabalin and MODAFINIL are addictive you do go through withdrawals why I have to fight with insurance company Medicare Medicaid United healthcare over this is absolutely absurd. We’re the richest country in the world and we have the worst health system. I’m not gonna go into politics anyway just passing it along. You know sharing on this site really is a good thing. I feel much better now a little poorer but expressing myself helps to lower my anxiety level, which for the most heart I usually have in control. Have a great day.
You know what’s frustrating Medicare Medicaid United healthcareMVP. My doctor calls in a prescription one that I’ve been on for a while and now it’s denied and now it has to go for review three of the medication’s. I’m on addictive gabapentin pregabalin, and modafin I am lucky I can afford to pay out-of-pocket, but I can’t imagine what hell it must be for people who can’t now plainly if I did not get my medication I would experience withdrawal symptoms just what I need with my autonomic neuropathy I can imagine the stress and anxiety many people feel who can’t afford to pay out of pocket. I think the medical industry of this country, though the richest in the world has a great deal to be desired. I was on the phone for over 2 1/2 hours today trying to get my prescriptions approved. Needless to say the people I spoke to passed me around and when I finally got some answers, the answers was it was denied and they’re going to refer it back to my doctor and then my doctor’s gonna refer back to them and then they’re gonna refer it back to my doctor, blah blah blah blah blah anyway as I started this post I was pissed off now I’m just disgusted, but my anxiety level is gone, and I am back to living in the moment you know the pain of neuropathy put you in a very dark place the medical industry just put you in a place. A little venting never hurt. I’m gonna go out. Sit in the sun and listen to some music.
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1 ReactionHello,
When we have a condition we know will progress with time, those bright moments become particularly special. In fact, we all really need to live in the current moment we're in especially the good ones as they do become very special and hopefully we gather enough from them to carry us thru the darker moments.
Wishing you more special moments and less dark ones.
gus
I have to agree with everyone here that one of the most difficult parts of neuropathy, for me, has been the psychological impact. I'm 74, and developed neuropathy after back surgery in 2022. I have numbness and tingling, and weakness in my feet and calves, and this affects my mobility, so I walk with a cane or with braces or both. Some days are better than others. In 2021, I felt great. I loved to work in my garden, ,go for walks, swim, etc. Now it's a struggle to do those things, and I've had to adjust to doing "small things".... or just a little each day. I miss being able to work in the yard/garden so much. And I feel so very old, which I am, I realize, but I didn't feel this until the neuropathy. It is definitely a struggle, but I try my best to keep moving everyday. And I have become much more understanding of people with more serious disabilities. Best to all of you! Mike
Sitting in the sun and listening to music is definitely one of the ways that I deal with my chronic pain whenever I can.