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Dying Well

Aging Well | Last Active: May 14 8:57am | Replies (101)

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Profile picture for cynthiaftaylor @cynthiaftaylor

I am a believer in Jesus, and you stated you weren’t
,so I won’t push my beliefs on you, but I have had a POLST and a DNR since I watched several loved ones suffer with the decision of life support and when to let someone go. I am also not suicidal, I love every minute of my life, but I do not ever want to put my Husband or sons in a position of when is the time to turn off life support, I choose to die whenever the good Lord calls me home. I have had legal document signed by my Phycician , for many years and have had to under spinal surgery in 2020. That meant general anesthesia.
I just turned 70 and hope to have many years left here on earth. Barring any diseases or accidents, I seem to have longevity genes. Mom and Dad passed in 2023 at the ages of 90-1/2 and 92. They died within 2 months of each other, and were not sick. Mom is one of 8 kids and only her youngest brother died before 80 due to agent orange poising in Vietnam Nam. Everyone else lived late 80’s or mid 90’s. None had memory issues. I don’t have a support group to recommend to you, but I do understand how you feel about aging . If I was unable to care for myself or unable to make my own decisions, I wouldn’t want anyone else to have to make those decisions for me. Thus my DNR and Polst. My Husband children know my wishes and have promised to honor them. We will all eventually die. But I made my own wishes known in a legal document. I don’t consider this decision horrific, and I am of sound mind.

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Replies to "I am a believer in Jesus, and you stated you weren’t ,so I won’t push my..."

new to this group and find it very informative and comforting.
could someone advise me how to go about getting a DNR and POLST,
i am in fairly good health but have had numerous experiences with dealing with
people that have been allowed to linger and suffer if not physically -mentally.
Time for me make sure my loved ones nor I go thru those dreadful times.
Thank you

Hi @cynthiaftaylor . I didn't mean to give the impression to you that I am not a believer. I'm sorry if I mislead you. My faith in God, and in the Holy Trinity is the strongest it's ever been. The words that speak to me are from St. Paul, "pray ceaselessly". And I do, doubt I would have made it this far on my own. I am planning on revisiting all of my advance directives this summer. I did them forever ago, and my wishes have not changed. But the laws do. I recently retired as an Eldercaregiver, my second career. I stopped because my last patient passed and I knew I was burnt out. Not on caregiving, I've loved all my folks to bits. I had to step away from the medical industry, because I was getting combative. I was also horrified by the rampant ageism in medicine. I sure didn't expect that. All my people have their ducks in a row, had advance directives, DNR, POA. Etc. Here in AZ we can file them with the AG's office, which is a lifesaver. I would make multiple copies, all signed and notarized. I would take them to their doctors' offices, and local hospital and request they be placed in the patient's chart. If it was a Vet, the VA got a set. I kept the originals, and several copies in file. Why? Because nobody reads anymore. If you don't have an advocate there hospitals routinely ignore the directives. I would show up, wave it all in staff's faces and that's when the combat commenced. "well, we've never seen this before". Try going beyond the first page in the chart, you morons. If a patient comes through ER, without said advocate, here's what happens. The race is on, to pad that hospital bill with useless diagnostics that cost a fortune. Setting the cost aside, I've seen patients in extremis, close to death get hustled all over town in ambulances for extra imaging, etc. Families getting hysterical, because their loved one's wishes are not being addressed or even considered. There are laws now, in most states, addressing this problem, but it is endemic to the elderly death experience. I had seen enough, and had to step away, for my own health and sanity. There are loopholes, even in DNR. Is she really dying? They have to make sure, before they can even look at the DNR. Let's do a bunch of tests and see. I hope your doc is still around to advocate for you, or a trustworthy family member or designee. It's dreadful time for families. They are bereft as it is, and under enormous stress. Which is the cue for everyone to pile on. The social worker, who is getting hassled by her bosses, to empty the bed. The insurance company reps, who come off ultra sincere while they tell you softly, that oh no, that isn't covered. They will ask the patient rep million stupid questions and then lie in the answers. It's always the next person in line's job to tell the family that what the previous said is incorrect, until your head spins! I am my family's patient rep, because I am the family pit bull. My daughter is starting to take over, even tho she's in poor health herself, but is finding her advocate's voice. And me, I'm done. No more doctors ('cept eyes and feet). No more invasive procedures, no more questionable meds. It's been five years now, and I am doing great, having taken the responsibility for my own self care. I was once a nurse, my mother was a nurse. I have two cousins' who are doctors. We're all on the same page with this stuff, and they are all over the US. Marcus Welby is long gone. Hospitals are for profit, Which means they answer to a Board of Investors who are only interested in profitability. And senior are the cash cows in that equation, for the Boomers are aging out, while the system is collapsing. Peace and Every Good! Mayo Rochester is the exception, I've heard, but Mayo Phoenix and Jacksonville are the same as everyone else.