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Leiomyosarcoma vs pelvic masses and getting a diagnosis
Sarcoma | Last Active: Sep 5 8:30am | Replies (22)Comment receiving replies
Hoping and praying for successful surgery! I am hoping they find out exactly what it is, through biopsies this should tell you, scans are good to see, but cannot diagnose it. May you and your daughter have good support, loving care and receive comfort from supportive services. Best wishes for you both!!!!
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Just responding about my case: diagnosis and surgery results.
I was diagnosed with LMS last January as a result of a Mayo analysis of the 7 biopses. The mass was 3"X2.5"X3" and found in the pelvis. The first action ended up being a series(25) of radiation applied. After a 5 week treatment (2 antibiotics for a blood infection), and a urology procedure of inserting 2 stents in the ureters, I had surgery on June 25. The result was not what any of us wanted: leftover pieces of the sarcoma. The problem was that the sarcoma inveloped the femoral nerve and a muscle (psoas). The nerve was not recoverable, and left me with a numb leg from the hip to the top of my ankle. Pt has been very good and encouraging. I walk with a walker now and working towards a cane. Cemo was offered, but at 77 and the descriptions of some of the affects of it, I decided not to participate.