total colectomy with IRT - energy level issues now
I had this surgery almost 2 years ago. I can't predict how an activity is going to affect my day-to-day energy. I went for a drive and walk on a sunny cool day. Maybe I got dehydrated. a little. I got home, felt nauseous, took ondansetron, more than a little water, some food and was exhausted the rest of the day. Watched tv.
Prior to my surgery I had lots of energy. Thanks for your replies
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Welcome to Mayo Clinic Connect, @aileenredding. What a bummer to have to deal with exhaustion and unpredictable day-to-day energy.
Tagging a few Connect members who are familiar with total colectomy and/or IRT to see if they have input on fluctuating energy levels two years on from surgery: @lsdd13 @suzytalib @angiemns @madso25 @mypine @bluehedgehog. @annewithane also may have some input on your energy varying. I'd also like you to meet @hopeful33250.
What colon condition prompted your surgery, aileenredding?
I only had 1/3 of my colon removed in 2021. I had diverticulitis.
My decrease in energy level might be partially due to aging. I’m almost 79.
I also test positive for SIBO/IMO.
I had my colon removed 61 years ago for ulcerative colitis and had a very healthy life until my age 81 caused health not related to a ileostomy
Stay hydrated… there are plenty of vessels you can pick up for
Hot/cold/both. Exercise, bike,
Walk, gym, calisthenics. Take your life back. You deserve to have one.
I had a congenital malrotation of my large bowel. I always had problems with constipation and it does run in my family. I also had diverticulitis off and on for 30 years. In July ,2023 my colon blocked up completely and I had to have it removed. I am 78 now and was 76 when I had the surgery.
Wow, 1964 surgery, you are a success. What was the toughest part of recovery? I am still struggling. I think I need a passion. For me that probably means horseback riding; there's a long story behind that. It would be hard but reading through these pages, I realize there is no room for fear or self-pity.
Aileen you score a “10” getting (easy now) back on your horse is so important….or the world will just pass you by.
I had SIBO before my operation. Since I don't have a large bowel, I am hopeful I can't get SIBO.
I had a newborn to look after so no time to focus on me. I have had a great life raised two sons traveled the world, went white water rafting in Africa, rode camel in Egypt, climbed to the top of the Bacillica in Rome etc there was never anything my lost kept me from doing except wearing a bikini. Had some meaningful relationships along the way
Good luck!