← Return to 39 year old brother

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nikki345 avatar

39 year old brother

Pancreatic Cancer | Last Active: May 14, 2025 | Replies (27)

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Profile picture for marienewland @mnewland99

Thank you, Joy. It’s always unsettling to get bad news. My theory is that only reason I could be on gemzar since January of this year was due to the fact that I had radiation treatment last October. 6 months after last radiation treatment was April 14 and then I took 1 session off to move. Gemzar alone was not enough to keep my cancer at bat is my theory. I had a guardant 360 test that only showed very minimal evidence of TP53 that was noted as most likely benign. Probably, for now only choice is to add back abraxane - maybe at a lower dose than before. There’s no way my current Dr will do that - he’s legitimately fixated on me going on the incoming trial for 6236 which doesn’t address TP53, so I once again have to go shopping for a new oncologist. Thank you for your kind sentiments and please keep me in your prayers.

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Replies to "Thank you, Joy. It’s always unsettling to get bad news. My theory is that only reason..."

@mnewland99 You are always in my prayers.

Have you met with Cedars Sinai yet? Over a year ago I met with a wonderful doc there that had fellowed with well known doc at Johns Hopkins, Dr Laheru. He turned me on to a clinical trial. Also, a short distance from you is Dr Erkut Borazanci. Excellent in this field, well known. I have met with him and hope to fly out to see him in June. He is in Scottsdale and associated with Honor Health Institute as well as TGEN.
My son’s family was at the Anaheim Purple Stride and we had a great team at our Atlanta Purple Stride. Way to go!!!