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Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (32)
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Pamela, have you had a gallium 68 scan yet? How were they able to locate your tumors? I’m pushing for an endoscopy with ultrasound because my docs think my primary might be ‘hiding’
Are you saying that your docs don’t think it will spread out of the stomach?
As for ignorant and condescending health experts I’ve had years of them! I was once told to go home to my husband and stop bothering him! I sent him my diagnosis a year later, lol. So frustrating
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Hi pokeymama,
Omg, how infuriating that you were told by a (male, I'm sure) doc to be quiet and go home to your husband. Ugh. I'm so sorry.
I asked about getting a scan when I went to UCSF, but was told not to bother, because "It would show things that you'd rather not know about," i.e. tumors so tiny that there's nothing that can be done. So I agreed, and that was that.
They found the malignant tumors during an upper endoscopy, which they removed. They don't things will metastasize any time soon, since the tumors are small.