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Looking for tips on managing Radiation-induced proctitis

Posted by rtv @rtv, Dec 17, 2023

Looking for tips from anyone who has experienced bowel incontinence caused by radiation induced proctitis. My husband was diagnosed with radiation induced proctitis 2 years post-radiation therapy. He had a bleeding rectal ulcer that was treated with twice daily sucralfate enemas for 8 weeks. The bleeding has stopped but he still has occasional fecal incontinence.

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rtv | @rtv | Apr 28 8:07pm
In reply to @vircet "@jc76 i completed my 5-treatment SBRT last Monday and noticed a little blood on toilet paper..." + (show)
@vircet

@jc76 i completed my 5-treatment SBRT last Monday and noticed a little blood on toilet paper yesterday and this morning. I didn't have Space OAR; my oncologist said I didn't need it because I had gold seeds (fiducial markers) implanted on my prostate for MRI-Guided radiation planning. Your minor bleeding was several months after radiation stopped; did it get a little worse before it went away? My oncologist said my immediate side effects will peak 3 or 4 weeks after my last treatment. On my 4th week after last radiation, I will be on a cruise so I am a bit worried if my minor bleeding now will get much worse at that point.

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My husband's radiation proctitis developed approximately 2 years after he completed treatment. The bleeding got worse after he was treated by APC (argon plasma coagulation) during a routine colonoscopy. The APC caused a bleeding rectal ulcer and explosive diarrhea. We did twice a day medicated (sucralfate) enemas for about three months. The bleeding stopped almost immediately after starting the enemas but we had to keep treating until the ulcer had totally healed.

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