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Hi, I am a new member to this site. I was previously diagnosed with myasthenia gravis, and sent to the specialized center at Upstate Medical in Syracuse. To my surprise, they diagnosed two things going on in me: MG and to my surprise MSA because the symptoms are exactly as you describe. The loss of site initially and then general, overall profound muscle weakness were the two symptoms that fit MG; all the others (incontenence, drooling, tremor, balance issues, shuffling, etc. fit MSA exactly. I’m working at adjusting, but it is not easy.
Replies to "Hi, I am a new member to this site. I was previously diagnosed with myasthenia gravis,..."
I am so sorry for your dx. How long have you been having these symptoms? So many folks take a long time to get a dx. Sounds like you got yours pretty quickly. Hoping you have a good support system. Praying that things will go slow and you will have many good days ahead. ❤️
When we finally ended up at a neurologist's office, and after several visits, the Dr. handed me a sticky note with: Multiple System Atrophy-C...the other Spinocerebellar Ataxia (SCA Type 3). I did the research and his symptoms clearly led to MSA-C. There is also MSA-P, which resembles more parkinsonian symptoms, i.e. stiffness, tremors, etc. Talk to people and do your research, these are all "tricky" diseases.
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I meant to type sight when I typed site. And, I forgot to mention that I too have developed a strange rash. It initially appears as a rectangle that contains small blisters and a rough tecture, that itches terribly. I’ve asked my dermatologist to look at it. I let you know what she concludes (the folks in Syracuse did not think it was caused by a disease).