1. < Prostate Cancer

Share your test results (if you'd like)

Posted by northoftheborder @northoftheborder, May 28, 2024

I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide a place for sharing, support, and encouragement, not for debating tests and treatments

I'll start. I've been at stage 4b oligometastatic for over 2½ years, and last Friday I did my routine 12-week bloodwork. My PSA remains below 0.01 (undetectable), Orgovyx and Erleada are holding my testosterone at 0.2, and the other tests are in normal ranges, except for those related to iron, which are slightly low.

Overall, it was a banner day! 🎊 I always treat myself to a masala chai at the little Indian café across the street while I'm waiting for my results to pop.

Do you have any recent test results you'd like to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

northoftheborder | @northoftheborder | 1 day ago
In reply to @surftohealth88 "I do not know if this counts for this thread since we did not start any..." + (show)
@surftohealth88

I do not know if this counts for this thread since we did not start any therapy yet but we were surprised and happy to see that
PSA went from 7.6 to 5.1
in about 6 weeks after we started supplements and diet changes (knock the wood) . I know that it does not mean that cancer is going anywhere but we were happy to see this trend since we somehow have to wait for every app. and consultation extra long time :(. This way at least (maybe) it means that process slowed little bit ? It is especially encouraging since free PSA went UP also. It is now 21 and was not that good ever ( and we were about 10 years on AS). So yes, we also had a small treat this morning :). Every little victory counts.

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It's moving in the right direction, which is always a good thing.

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surftohealth88 | @surftohealth88 | 1 day ago
In reply to @northoftheborder "I have a happy result to share today. My radiation oncologist has ordered new scans as..." + (show)
@northoftheborder

I have a happy result to share today.

My radiation oncologist has ordered new scans as I'm approaching my 4-year anniversary with stage-4 PCa. I had the bone scan this morning, and the result popped online this afternoon. It's entirely negative: there is no trace left of my spinal lesion from 2021, and nothing else that even hints at new metastases. 🎉

Interesting, the scan did detect the two ribs that I bruised in a fall last year (but the person reviewing the scan correctly concluded that the radioactive uptake was from trauma rather than cancer, even though I hadn't mentioned the injury).

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WOOOOWWWW !!!! WOOT WOOOT !!!! CONGRATS North < 3 !!! That is just wonderful on all levels !!!

CHEERS and may it stay this way forever and ever < 3 !!! Actually may it just be gone completely one day soon when they discover even better meds that produce complete cure !!!
I am soooo happy for you and I wish I can send you extra large masala chai : ) !

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1 reply
northoftheborder | @northoftheborder | 1 day ago
In reply to @surftohealth88 "WOOOOWWWW !!!! WOOT WOOOT !!!! CONGRATS North < 3 !!! That is just wonderful on all..." + (show)
@surftohealth88

WOOOOWWWW !!!! WOOT WOOOT !!!! CONGRATS North < 3 !!! That is just wonderful on all levels !!!

CHEERS and may it stay this way forever and ever < 3 !!! Actually may it just be gone completely one day soon when they discover even better meds that produce complete cure !!!
I am soooo happy for you and I wish I can send you extra large masala chai : ) !

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Funny you should mention that! I'm boiling water for a home-made (admittedly, inferior) masala chai right now.

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1 reply
surftohealth88 | @surftohealth88 | 1 day ago
In reply to @northoftheborder "Funny you should mention that! I'm boiling water for a home-made (admittedly, inferior) masala chai right..." + (show)
@northoftheborder

Funny you should mention that! I'm boiling water for a home-made (admittedly, inferior) masala chai right now.

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I forgot to mention that I am clairvoyant XP , ha ha.

JK JK , you mentioned it in one of your posts ; ), that you like masala chai < 3 so I remembered 🙂

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ronc320403 | @ronc320403 | 2 hours ago
In reply to @ronc320403 "What ever works and it will be different for everyone. For me, i have just tried..." + (show)
@ronc320403

What ever works and it will be different for everyone. For me, i have just tried to stay outside myself. It has been rather easy as since 2017, when my PC popped up, my wife was suffering from COPD and slowly going down hill. As a result i became caregiver, house and yard husband which will certainly take your mind off of internal concerns other than I've got to survive to tend to her. It's worked so far but I lost her just over 60 days ago. For a very short time, I thought I'm finished now and considered giving up. She would not have wanted that so I'm back. No more depression and will continue to fight it. Oh, forgot to mention, when she died, we only were short 28 days from celibrating our 61st anniversary.

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Thank you!

Ron

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zzotte | @zzotte | 16 minutes ago

I just had my Pet scan done the results are in but I’m too chicken to look it up on mychart so I’m waiting to hear from my Doctor I don’t know what it’s worst waiting for the Doctor to call me or just look the darn thing up 🙁

Zzotte

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