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DiscussionI had my First Reclast Infusion today.
Osteoporosis & Bone Health | Last Active: Apr 30 7:07am | Replies (22)Comment receiving replies
Replies to "hi, it is very kind of you and I would like to ask some questions!! I've..."
Hi nelluna17,
I was diagnosed with osteoporosis when I was 42 years old. I had had a hysterectomy when I was 40 and was unable to be on HRT. I refused to go on drugs for a few years because I didn't take my diagnosis very seriously. I don't remember what my T score was back then (I'm 68 years old now) but I know at my worst I was -3.4 in my hip. That's when I went on Forteo. I was able to find my bone density scan results for the following years: 2009 was -2.8 AP spine and -2.3 dual femur. 2011 was -3.0 AP spine and -2.4 dual femur. 2013 was -3.0 AP spine and -3.1 dual femur. In 2018 I went to a different facilty and my results were: lumbar spine -2.6 and left hip -1.7, femoral neck -2.8. I had some improvement in comparison to 2016. But then in 2020 lumbar spine was -2.5, left hip was -2.3, femoral neck was-2.8. In 2022 (this was during Prolia) lumbar spine was -2.4, left femoral neck was -2.4. My VFA indicated a wedge compression deformity at T4. Later, I had a fracture at T2. My femur density increased by 4.8% I had to stop taking Prolia because I developed an infection in my lower jaw and had to have a tooth extracted. I take really good care of my teeth and was shocked at this diagnosis. It took me 4 months to heal from the extraction because bone remodeling was very slow due to the Prolia. I started taking Tymlos in April 2024, soon after the extraction site finally healed (the extraction was on 12/1/23). It had been 10 months since I had had any osteoporosis meds by the end of April 2024. I was only able to take Tymlos for 10.5 months because I developed high blood calcium. My new doctor ordered another bone density scan after the Tymlos and my lumbar spine was -1.6 (improved from -2.4 in 2022), left femoral neck was -2.7 (worse from -2.4 in 2022), and right femoral neck was -2.1. I would like to develop a chart with all these results so I can track improvements and/or decreases for all of these years. I hope some of this helps (and I'm not boring you!), but if you have upcoming extractions and implants you will want to wait until your dental issues are resolved, unless you are able to take Tymlos or Forteo (these drugs will not cause osteonecrosis of the jaw). My doctor said to me "so you'd rather break a hip and take the risk of being permanently disabled rather than possibly suffer some side effects from a drug that will prevent fractures?" I cried right in front of him. He left the room and sent his NP in to talk with me. Ugh. In the end, the decision is yours, and you have to weigh the risks and the benefits, and that is so hard! I am so sorry you and all of us here are going through this. All the best to you, and please let me know if there is anything else I can help with 🙂 Blessings to you.