Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
Hi,
Yes, I have Peripheral Neuropathy from inherited CMT. (Charcot Marie Tooth) and I was very active in
playing Tennis along with other fun activities, but I slowed down as I got older. Did you know that "Alan Jackson" -Country singer has this as well ? Hugs to you !
I have neuropathy in my feet, calves, and hands. I take gabapentin but it doesn't do much. I also had a laminectomy in left side of my back due to leg cramping and seizing up and causing excrutiating pain. It didn't helpmy leg. It went more numb or dead as I call it because it really is dead. Plus, before I had that surgery, they tried a shot, which didn't work and caused my right calve to die also. Now its in my hands. I don't know what to do, it's just getting worse. I feel I will eventually be in a wheel chair. Doctors just give meds with and tell you to cut out sugars. It's unbelievable there is no real help here. I am in Wyoming.
Hi !
I am a Diebetic II for seven years and neurology pain with tingling, nerve strikes and finally numbness started 5 years ago. Started in feet, then grew to calves, thighs then hands/fingers…
I have seen many doctors and specialists but there is no cure as they prescribed gabapintin, juniva, etc… I also tried many creams to ease nerve pains. Icy hot was the only one that helps a bit.
After thousands of dollars, doctors do not have a cure for it. It’s sad that i have live with such discomfort and pain for rest of my life. I’m 58 and plan to retire at 65. I cry cause my golden year’s retirement won’t be as enjoyable as it should be!
I only had wished that doctors would said “no cure” but make patients believe that they can help….money is taken from you and it’s so extremely sad !
I have had Neuropathy of the motor and sensory nerves for Over 25 years, it has been slow progression but the burning pain in my legs and feet have got so bad over the last 3years it is impacting my life were now I have no energy and feel unwell 24/7,I lost my balance about 12 years ago so I have to use a wheelchair but I don’t feel like leaving the house anymore my doctor prescribed BuTec patches and they don’t really help,I have been referred to pain clinic but that was nearly a year ago and I’m still waiting.
I feel if I could numb my legs at night I might get some sleep, so I was wondering if any one has found something that has helped them.
I have had Neuropathy of the motor and sensory nerves for Over 25 years, it has been slow progression but the burning pain in my legs and feet have got so bad over the last 3years it is impacting my life were now I have no energy and feel unwell 24/7,I lost my balance about 12 years ago so I have to use a wheelchair but I don’t feel like leaving the house anymore my doctor prescribed BuTec patches and they don’t really help,I have been referred to pain clinic but that was nearly a year ago and I’m still waiting.
I feel if I could numb my legs at night I might get some sleep, so I was wondering if any one has found something that has helped them.
Welcome @gerriw76, I wish there were some easy answers to help you get some relief for your neuropathy pain. I know it has to be difficult suffering so long with not much relief. You are not alone and there are many members here on Connect that have shared what has given them some form of relief. Here's a list of discussions and comments on Connect from members who have shared what helps them - https://connect.mayoclinic.org/search/?search=neuropathy+what+helps.
The Foundation for Peripheral Neuropathy also has a list of complementary and alternative therapies if you haven't already seen them - https://www.foundationforpn.org/therapies/
Are you able to talk to your doctor and ask for an update on your referral to a pain clinic?
Welcome @gerriw76, I wish there were some easy answers to help you get some relief for your neuropathy pain. I know it has to be difficult suffering so long with not much relief. You are not alone and there are many members here on Connect that have shared what has given them some form of relief. Here's a list of discussions and comments on Connect from members who have shared what helps them - https://connect.mayoclinic.org/search/?search=neuropathy+what+helps.
The Foundation for Peripheral Neuropathy also has a list of complementary and alternative therapies if you haven't already seen them - https://www.foundationforpn.org/therapies/
Are you able to talk to your doctor and ask for an update on your referral to a pain clinic?
Thank you John for your reply and the links you have mentioned .
I have mentioned the pain clinic to my doctor but she says the waiting list I have also heard from them and I am now hoping the appointment will be around August. 🙏
Try a vibration plate for balance issues. I have been using mine for almost a month. It has helped with
my balance issues. I use it for 15 minutes twice a day along with 50 crunches. It works
Everyone is different. My condition came from a cholesterol drug many years ago and that caused Type 2 diabetes.The diabetes was the cause of nerve damage and then came the neuropathy. I have zero pain, just numbness and weakness in my legs. I do 60lb leg presses at the gym to keep the blood flowing and strength in my calf’s and quads. I walk like I’ve been drinking scotch all day, and I’ve had a few falls too. Neuropathy is here to stay and all this online cures is a bunch of crap. I still do what I want and I learned to live with it. Take a deep breath and learn how to deal with it.
Hi !
I am a Diebetic II for seven years and neurology pain with tingling, nerve strikes and finally numbness started 5 years ago. Started in feet, then grew to calves, thighs then hands/fingers…
I have seen many doctors and specialists but there is no cure as they prescribed gabapintin, juniva, etc… I also tried many creams to ease nerve pains. Icy hot was the only one that helps a bit.
After thousands of dollars, doctors do not have a cure for it. It’s sad that i have live with such discomfort and pain for rest of my life. I’m 58 and plan to retire at 65. I cry cause my golden year’s retirement won’t be as enjoyable as it should be!
I only had wished that doctors would said “no cure” but make patients believe that they can help….money is taken from you and it’s so extremely sad !
Hi Kimmycat, Iam a PT
practicing in India.
I have been treating DIABETIC NEUROPTY
with FSM - FREQUENCY SPECIFIC MICROCURRENT THERAPY.
If you live in USA, please find out for such.
a practitioner.
You will definitely benefit from this .
All the best.
Connect
Connect
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Helpful
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4 years.
I could stand the pain, if I just could have normal balance back. I have had a number of serious falls and now use a walker.
Hi,
Yes, I have Peripheral Neuropathy from inherited CMT. (Charcot Marie Tooth) and I was very active in
playing Tennis along with other fun activities, but I slowed down as I got older. Did you know that "Alan Jackson" -Country singer has this as well ? Hugs to you !
Hi !
I am a Diebetic II for seven years and neurology pain with tingling, nerve strikes and finally numbness started 5 years ago. Started in feet, then grew to calves, thighs then hands/fingers…
I have seen many doctors and specialists but there is no cure as they prescribed gabapintin, juniva, etc… I also tried many creams to ease nerve pains. Icy hot was the only one that helps a bit.
After thousands of dollars, doctors do not have a cure for it. It’s sad that i have live with such discomfort and pain for rest of my life. I’m 58 and plan to retire at 65. I cry cause my golden year’s retirement won’t be as enjoyable as it should be!
I only had wished that doctors would said “no cure” but make patients believe that they can help….money is taken from you and it’s so extremely sad !
I wish you the best!
I have had Neuropathy of the motor and sensory nerves for Over 25 years, it has been slow progression but the burning pain in my legs and feet have got so bad over the last 3years it is impacting my life were now I have no energy and feel unwell 24/7,I lost my balance about 12 years ago so I have to use a wheelchair but I don’t feel like leaving the house anymore my doctor prescribed BuTec patches and they don’t really help,I have been referred to pain clinic but that was nearly a year ago and I’m still waiting.
I feel if I could numb my legs at night I might get some sleep, so I was wondering if any one has found something that has helped them.
Welcome @gerriw76, I wish there were some easy answers to help you get some relief for your neuropathy pain. I know it has to be difficult suffering so long with not much relief. You are not alone and there are many members here on Connect that have shared what has given them some form of relief. Here's a list of discussions and comments on Connect from members who have shared what helps them - https://connect.mayoclinic.org/search/?search=neuropathy+what+helps.
The Foundation for Peripheral Neuropathy also has a list of complementary and alternative therapies if you haven't already seen them - https://www.foundationforpn.org/therapies/
Are you able to talk to your doctor and ask for an update on your referral to a pain clinic?
-
Like -
Helpful -
Hug
2 ReactionsThank you John for your reply and the links you have mentioned .
I have mentioned the pain clinic to my doctor but she says the waiting list I have also heard from them and I am now hoping the appointment will be around August. 🙏
-
Like -
Helpful -
Hug
2 ReactionsTry a vibration plate for balance issues. I have been using mine for almost a month. It has helped with
my balance issues. I use it for 15 minutes twice a day along with 50 crunches. It works
Everyone is different. My condition came from a cholesterol drug many years ago and that caused Type 2 diabetes.The diabetes was the cause of nerve damage and then came the neuropathy. I have zero pain, just numbness and weakness in my legs. I do 60lb leg presses at the gym to keep the blood flowing and strength in my calf’s and quads. I walk like I’ve been drinking scotch all day, and I’ve had a few falls too. Neuropathy is here to stay and all this online cures is a bunch of crap. I still do what I want and I learned to live with it. Take a deep breath and learn how to deal with it.
Hi Kimmycat, Iam a PT
practicing in India.
I have been treating DIABETIC NEUROPTY
with FSM - FREQUENCY SPECIFIC MICROCURRENT THERAPY.
If you live in USA, please find out for such.
a practitioner.
You will definitely benefit from this .
All the best.