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For me, there was PMR fatigue which wasn't so bad. I lost a lot of sleep when PMR was untreated. When PMR was treated with Prednisone, I had energy to spare for awhile. I felt like I didn't have any need for sleep. That kind of energy was not sustainable.
After long term treatment with prednisone another magnitude of fatigue crept in. Some people call it "overwhelming fatigue" or "deathly fatigue." I called it "fatigue on steroids." That type of fatigue is extremely overwhelming. The overwhelming fatigue got worse and worse as I tried to taper my prednisone dose lower. I didn't realize that adrenal insufficiency and a low cortisol level can cause that kind if extreme fatigue until someone explained to me.
Replies to "For me, there was PMR fatigue which wasn't so bad. I lost a lot of sleep..."
Once when I took prednisone, I stayed so busy you couldn't nail me down, but then another time I took it I had no energy at all. I also have fatty liver disease, which can also cause fatigue. No Dr. offered to tell me that. I am feeling better since I am trying to lose weight and eat a healthy liver diet. Right now, I think my PMR is under control.
@dadcue I felt that, too. When I was first treated with Prednisone, I had all this energy. But now, I tjink tge farigie is from the Prednisine itself. Trying to taper-off. I’m at 2 mg./ day, now, but have to take a nap by the afternoon…..
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I'm not taking prednisone and haven't for about a year. I do think I have "overwhelming fatigue." I don't want to go anywhere or do anything. This just isn't living, I was diagnosed with PMR in 2012. But I'm not sure what is causing the fatigue.