Very sorry for your pain and troubles. My experience is very much like yours....but my right lower extremity ---- suddenly in the middle of the night it felt like someone has poured gasoline on my right foot and set me afire. Foot curled inward. Saw three doctors they had no help to offer. Then saw a new MD to my area. Caroline Flowers MD. Safford AZ Brilliant!!! Now most days are pain free.. after a year six months of extreme pain.