How long did you wait for second (third) opinion ?

surftohealth88, if your husband has started ADT, treatment has begun and you can wait in purgatory without penalty. If he hasn't or decided against ADT then I'd be in a great rush calling for cancellations every day. And finding other radiology oncologist and surgical oncologists to get the second and maybe a third from. Travel if you have to, Best wishes

Perhaps, you can get on waiting lists ....and as mentioned by @gently, if he has started ADT, you can see the impact and learn much from that. Our ADT started 3 days before chemo, so we won't see the impact of the hormones alone - just a thought if you are wondering about androgen receptivity/sensitivity. Or, if you can travel to center of xcellence you often can see all those you need to in one visit. And while there could be some 'duplication' of tests/images (want their own images or lab results), but hey, that's a 2nd opinion in and of itself, if not another set of data for confirmation.
All Best

Have you looked at virtual consults? A lot of doctors are doing that, it's another income stream for them, and they are all over the world.

I waited 2.5 years after having salvage radiation for a margin issue and 3 months in on ADT. Lost confidence in my SO due to poor communication. Went to a genitourinary cancer specialist at a Comprehensive Cancer Center and was just amazed at the thoroughness of their process. I now have a level of confidence in where I am in the process. Wonder if a private practice would ever say that? You mentioned Cribriform so I ask how many pins and what is the percentage in that those pins? My guy wasn't too concerned with 10% in one pin. He stated the current danger is over treatment. Best wishes on your journey.

Thanks all for your valuable input and trying to help. < 3
We first waited for about 2 weeks to get biopsy results (urologist was traveling and his office does not release results before he signs them off ). Biopsy was end of Feb. so we got results beginning of March. We saw this urologist in his office and he was completely aloof with zero concern and tried to finish visit ASAP, maybe because he knew that he "dropped the ball" regarding surveillance. He told us we should go and see radiologist and we asked for PSMA and he ordered it in local hospital. The first available opening for PSMA was April 9th. We called around ( university centers with great ratings and doctors) and nobody had anything sooner so we did it at local hospital. In the meantime we called center of excellence that is in the area and asked to have the soonest available app. with one of the "big guns" in that hospital. The soonest one was a zoom-call with him and that was end of this week. PSMA results came back last week. We talked to this oncology urologist but nobody else was involved in the same zoom meeting . He suggested that we should also talk to his colleagues who perform radiology treatments and one that does ablation and that after that we should make a decision. To be honest we agreed to that out of respect and courtesy since we did not want to look uncooperative. We thought that now that my husband is officially under his care that appointments would be easy to make but when we tried to make app. with suggested colleagues the dates that were available were at the end of summer regardless of if they were Zoom or in person.
Meanwhile we contacted another big university hospital in the area and are trying to make some app. for second opinion (I say second since original urologist does not count as opinion).
As a side note, we were told by onco urology surgeon that there is no rush which caught us off guard , literary. I did not have a decent night of sleep for 2 months imagining cribriform trying to escape prostate at any moment and than I heard that my husband should start "thinking "about treatment and that there is no rush and that he could even possibly have localized treatment (???) etc. , I was in daze and was wondering if I am understanding well (since I always question my English) and my husband of course "happy-go-lucky" guy was glad to hear all of that. He wanted and still prefers surgery but surgery was discussed only after I asked about it at the end of the meeting and was done in 30 sec. At the same time surgeon will not be doing surgeries whole summer till September. We are trying to see if there are any openings in May *sigh My husband will start calling again Monday everybody but I am loosing my mind with all of this.
PS: just as a reminder my husband has only one core 4+3 ( and 2 o 3 of 3+3) , all on one side of gland, but there are cribriform and possible IDC in that core. I say possible IDC since that is how big hospital saw it , originally ( in the first lab) it was IDC . His Decipher was 100 !!!!!! : ((((

Forgot to say that specialist sent out PSMA imaging to his expert for reading those and they both agreed that single lymph node that had small uptake is not positive and he let us know personally next day and I am extremely grateful for that .

I have really zero complaint about this doctor as a person or as an expert, he is the first class and well known, but since we trusted the first urologist who did not do a good job I am just totally frazzled and have hard time to trust again. I now question time-frame since we can not miss some window of opportunity AGAIN :(.

Chippydoo, tanks so much for giving me personal experience with cribriform. My husband has one core out of 14 with 4+3 and it is 40%. He had only 2 or 3 other cores positive for anything and they were 3+3.

Are you saying that your doctor thinks that there could be "too much treatment" in your case ? I had a feeling that our doctor was also somehow thinking that we should chill and not jump into treatments before we know all options *sigh. It is all so confusing OR maybe I have overload and should spend some time gardening or going to nature ... 🙁

Surf, I reviewed my comment and do not feel the first sentence was clear. I waited 2.5 years to get a second opinion which was last week. I finished salvage radiation 6 weeks ago and have 11 weeks out of 26 weeks of ADT left to finish.
The Genitourinary cancer specialist I saw this past week stated that "you are at risk of having too much treatment for the level of cancer that you have." The short answer is, he is saying pause, take a breath and test in 6 months after completing ADT instead of 2 months. He told me to call him when/if my PSA gets to 2. Gives me a 70% chance of never having to visit this again. The real question is do I trust his judgement. The answer is yes.
So, what are you going to plant in your garden this spring? 🙂
Peace be with you.
Chip

Hi Chip - I am rose addict XP, every year I swear that I will NOT buy another one but it is futile attempt. I don't have any suitable free space in the ground any more so now I plant them in huge pots *sigh, hopeless situation indeed ... I am 61 and my husband 69 so digging big holes is not good sport for us anyways, but alas XP
Peace be with you too 🙂

Biopsy & Surgeon #1: January 2025
PSMA & Radiation Oncologist #1: Feb 2025
RO #2, Surgeon #2, Multi-Care team @ MD Anderson: March 2025
Surgeon #4: April 2025

Surgeons #1 & #2 and ROs #1 & #2 were all local to me in Louisville. Traveled to Houston & Columbus, OH for Surgeon/RO #3 and Surgeon #4, respectively.

RARP scheduled for June 16th with Surgeon #4. That relative delay is by my choice because it coincides with normal off-work time.