1. < Neuroendocrine Tumors (NETs)

I recently had surgery to remove NET in small intestine

Posted by hans051275 @hans051275, Feb 12 10:13am

They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver pathology came back clear. What concerns me is 7 out of 20 lymph nodes came back positive and they are telling me there is no treatment. They said high reoccurence and to just do scans and lab work every 6 months. Is this true no treatment just wait for reoccurence???
--Well-differentiated neuroendocrine tumor, grade 2.Tumor is 1.8 cm in greatest dimension.
Lymphvascular invasion is identified.
Perineural invasion is identified.
Number of lymph nodes examined: 20.
Number of lymph nodes involved: 7.
Maximum size of metastasis (glass slide measurement): 4 mm

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Turkey | @tomrennie | 2 days ago
In reply to @jlsgt "This is the article I found and referenced. I don't know about the actual study. https://www.everydayhealth.com/gastroenteropancreatic-neuroendocrine-tumors-gep-nets/" + (show)
@jlsgt

This is the article I found and referenced. I don't know about the actual study.
https://www.everydayhealth.com/gastroenteropancreatic-neuroendocrine-tumors-gep-nets/

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Thanks for sharing. There is a lot of great information here. I am grade 2 pnet stage 4 and have been on chemo for over 2.5 years. It is working for me. We all react differently to the cancer and treatment unfortunately. It is a bit of trial and error at times to figure out what works for each of us.

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