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Orthostatic Tremor

Brain & Nervous System | Last Active: Nov 19, 2025 | Replies (30)

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Profile picture for ocogram @ocogram

I was diagnosed with OT by a movement disorder neurologist in Milwaukee, WI 8 years ago. It is not an easy disease to live with and one others do not understand because we can walk, but not stand very long. But we have to adapt to our situation. Shopping has become more difficult; if it is a store without carts, I use my cane for stability. Whereas I formerly would enjoy browsing, I now make it as short as possible. I also use online shopping frequently. I miss the spontaneity I once had, such as visiting with a neighbor while out walking, visiting with people in a lobby after events, etc. If there’s no chair, it has to be quick. I know no one else with OT, so this forum is helpful!

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Replies to "I was diagnosed with OT by a movement disorder neurologist in Milwaukee, WI 8 years ago...."

@ocogram I feel exactly like you describe in your last paragraphs. I’m even missing my granddaughter‘s wedding because of the standing walking and visiting. I went to a memorial for a friend‘s husband and had to find a chair to sit in after I stood visiting people at reception. it will be three years in November.