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Is there a registry for TAA specialists? Also, I've had echos with very different results 1st one in Aug said 4.2 six months later an echo said 4.6. Both CTA's (six months apart said 4.3) I thought it was supposed to be CTA or MRI to measure aneurysm
Replies to "Is there a registry for TAA specialists? Also, I've had echos with very different results 1st..."
I am not aware of a directory. The best way is to look at centers that deal with several hundred of these a year. The cardiologists in Tallahassee were clueless and I got referral for a second opinion to go to Mayo Clinic in Jacksonville.
I will only relate to my case. My AAA was discovered 2011 and has been followed by my local cardiologist with mainly yearly ECHOS. However the reading have been all over the place to the point that the last one was read as 4.9 . The cardiovascular local surgeon said we needed a CT and I should probably be contemplating surgery. My anxiety reached 100%.The reason they follow with ECHO is because of the less exposure to radiation by CT scan, although is the only reliable reading. Due to my last ECHO findings I came back to Mayo and had a CT scan with contrast. Much to everyones surprise it read 4.5 cm unchanged from 2011. Needless to say my surprise and delight to hear I don't need to worry about surgery. So you see how erratic the ECHO measurements can be compared to the CT. I am at peace again
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I’m not sure there is a registry, their focus normally is related to their research interests. In my case, mine was referred by the surgeon and he couldn’t have been more spot on. I would look through the cardiologist bios in whichever medical center you go to and look for clinical interests, for example the screenshot attached shows what my cardiologist’s bio says. The man is an aneurysm/BAV nerd and also a geneticist