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Addressing the psychological impacts of neuropathy

Neuropathy | Last Active: 1 hour ago | Replies (35)

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@wolfie1

I have had my neuropathy for about five years. It has been progressive, starting with numb feet and fingertips, now it’s my full legs and has been very painful. I could walk independently until about a year ago. Now I need a full time walker. I think this past year has been my worst psychologically. I have been to some very dark places with reality settling in as to what I can and can’t do now. How I can and can’t live now. My balance is totally gone. I have a beautiful grandson that I have never been able to pick up. I’ve only seen him twice in two years. I was trying to muster up the courage to go see them next month for his birthday but after seeing my neurologist the other day I am going through another round of full spinal MRI and other tests two days before his birthday. I’m not sure what got me out of the blackness but I’m not dwelling on the negative so much. With spring coming I am loving the rebirth of our surroundings. I have a boyfriend that takes very good care of me and for now we’re ok. My Dr. still gives me hope so we’ll see. Sometimes it’s hard to read these entries seeing how long people have suffered, but I learn from them what helps. Good luck to all.

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Replies to "I have had my neuropathy for about five years. It has been progressive, starting with numb..."

I'm sorry to hear what you're experiencing, that sucks. It's hard to comprehend when you're given a diagnosis for a medical condition that has no cure, can't always be treated successfully, and is a lifetime sentence basically.
In my case, I've been dealing with osteoarthritis for over 20 years, and neuropathy in my feet for 10 years now, and it can be overwhelming at times.
If there's any way you can see your grandson on his birthday, do it, whatever pain or inconvenience it may cause, it'll be worth it in the end. Our grandkids are one of the few reasons I'm still here dealing with all this crap everyday.
All you can do is take it one day at a time.

Ever body please engage on this discussion I know it makes me feel better, people are opening up what living with neuropathy does to us emotionally, and how it effects our daily lives. It’s comforting to shared our sh ared experience's